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[针对风湿性疾病年轻患者护理的新支持服务]

[New support services for the care of young patients with rheumatic diseases].

作者信息

Schalm S, Niewerth M, Minden K

机构信息

Jugend- und Transitionssprechstunde im SPZ des Dr. von Haunerschen Kinderspital, Ludwig-Maximilian Universität München, Lindwurmstr. 4, 80334, München, Deutschland.

Rheumatologie im Endokrinologikum München, München, Deutschland.

出版信息

Z Rheumatol. 2018 Oct;77(8):685-693. doi: 10.1007/s00393-018-0547-x.

Abstract

The transition process from pediatric to adult rheumatological and internistic care is a challenge for patients and medical personnel. Every second patient with a pediatric rheumatic disease has not achieved stable drug-free remission at early adulthood and therefore requires continuing rheumatological care. Approximately one third of young people with rheumatic diseases in Germany discontinue regular specialist care on their way to the adult healthcare setting. Newly developed support services and tools to improve the healthcare of young people with rheumatic diseases in Germany are presented.

摘要

从儿科到成人风湿病学及内科护理的过渡过程,对患者和医务人员来说都是一项挑战。每两名患有儿科风湿性疾病的患者中,就有一名在成年早期未实现稳定的无药缓解,因此需要持续的风湿病护理。在德国,约三分之一患有风湿性疾病的年轻人在进入成人医疗体系的过程中停止了定期专科护理。本文介绍了德国新开发的旨在改善患有风湿性疾病的年轻人医疗保健状况的支持服务和工具。

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