Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences, School of Biological Sciences, Faculty of Biology, Medicine and Health, Manchester, UK.
NIHR Manchester Musculoskeletal Biomedical Research Centre, University of Manchester, Manchester, UK.
Arthritis Res Ther. 2018 Jan 11;20(1):5. doi: 10.1186/s13075-017-1502-y.
Significant progress has been made in the understanding of transitional care in rheumatology over the last few decades, yet universal implementation has not been realised and unmet needs continue to be reported. Possible explanations for this include lack of evidence as to which model is most effective; lack of attention to the multiple dimensions, stakeholders and systems involved in health transitions; and lack of consideration of the developmental appropriateness of transition interventions and the services/organisations/systems where such interventions are delivered.Successful transition has major implications to both the young people with juvenile-onset rheumatic disease and their families. Future research in this area will need to reflect both the multidimensional (biopsychosocial) and the multisystemic (multiple systems and stakeholders across personal/social/family support networks and health/social care/education systems). Only then will we be able to determine which aspects of transition readiness and service components influence which dimension. It is therefore imperative we continue to research and develop this area, involving both paediatric and adult rheumatology clinicians and researchers, remembering to look beyond both the condition and our discipline. Neither should we forget to tap into the exciting potential associated with digital technology to ensure further advances in transitional care are brought about in and beyond rheumatology.
在过去几十年中,人们对风湿病过渡期护理的理解取得了重大进展,但尚未实现普遍实施,仍有未满足的需求。造成这种情况的可能原因包括:缺乏哪种模式最有效的证据;对健康过渡所涉及的多个维度、利益相关者和系统缺乏关注;以及对过渡干预措施的发展适宜性以及提供此类干预措施的服务/组织/系统考虑不足。成功的过渡对患有青少年发病性风湿性疾病的年轻人及其家庭都具有重大意义。该领域的未来研究需要反映多维度(生物心理社会)和多系统(跨越个人/社会/家庭支持网络以及卫生/社会保健/教育系统的多个系统和利益相关者)。只有这样,我们才能确定过渡准备和服务组件的哪些方面会影响哪个维度。因此,我们必须继续研究和发展这一领域,让儿科和成人风湿病临床医生和研究人员都参与其中,既要关注疾病本身,也要关注我们的学科。我们也不应该忘记利用数字技术的令人兴奋的潜力,以确保风湿病领域及其他领域的过渡护理取得进一步进展。