与非裔美国女性参与基因研究决策相关的因素。
Factors Associated with African-American Women's Decisions to Participate in Genetic Research.
作者信息
Still Carolyn H, Gary Faye A, McDonald Patricia E, Yarandi Hossein N
机构信息
Instructor of Nursing, Case Western Reserve University, University Hospitals Case Medical Center and Supervisor, Clinical Research, Clinical Hypertension Program, Cleveland, OH.
Medical Mutual of Ohio and Kent W. Clapp Chair and Professor of Nursing, Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH.
出版信息
J Natl Black Nurses Assoc. 2014 Jul;25(1):25-32.
The purpose of this study was to determine the factors that are associated with African-American (AA) women's decisions to participate in genetic research. Using a descriptive correlational design, a convenience sample of African-American women (age ≥ 40) was recruited from various locations in the Midwest. During semi-structured interviews, demographics, psychological factors, knowledge of and attitudes toward genetics were collected. Of the 98 women (mean age 53), 66% indicated that they were unwilling to participate, despite having positive attitudes. Correlations were found between genetic knowledge and attitudes toward genetics (r = .35, p = .001), and decision-making to participate and attitudes toward genetics (r = .40, p = .001). Data revealed decisions were largely associated with their lack of knowledge and resulting perceptions. Efforts should be made to inform African-American women about the benefits of the new science through planned, culturally specific, and sensitive interventions that incorporate genetic and health literacy programs.
本研究的目的是确定与非裔美国（AA）女性参与基因研究决策相关的因素。采用描述性相关设计，从美国中西部各地招募了一个非裔美国女性（年龄≥40岁）的便利样本。在半结构化访谈中，收集了人口统计学、心理因素、对遗传学的了解和态度等信息。在98名女性（平均年龄53岁）中，66%表示尽管态度积极，但仍不愿意参与。研究发现基因知识与对遗传学的态度之间存在相关性（r = 0.35，p = 0.001），以及参与决策与对遗传学的态度之间存在相关性（r = 0.40，p = 0.001）。数据显示，决策很大程度上与她们知识的缺乏以及由此产生的认知有关。应通过纳入基因和健康素养计划的有计划、针对特定文化且敏感的干预措施，努力让非裔美国女性了解这一新科学的益处。
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