Maitan Patrizia, Frigerio Simona, Conti Alessio, Clari Marco, Vellone Ercole, Alvaro Rosaria
Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy.
Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Turin, Italy - Dipartimento di Biomedicina e Prevenzione, Università degli Studi di Roma Tor Vergata, Rome, Italy.
Ann Ist Super Sanita. 2018 Jul-Sep;54(3):185-193. doi: 10.4415/ANN_18_03_04.
To assess the caregiver burden (CB) of caregivers for people with Spinal Cord Injury (SCI) and to examine the psychological impact of the burden of caregiving.
Cross-sectional study. A set of structured questionnaires was administered to 55 family caregivers of individuals with SCI. The Modified Barthel Index was used to evaluate the independence of care recipients. The Caregiver Burden Inventory was modified and used to assess the CB. The Family Strain Questionnaire - Short Form was administered to measure the psychological impact of CB. The Short Form 36 was used to assess the health status of the participants.
CB affects mainly the domains related to time management, the physical condition of caregivers and their sense of personal failure. An increased level of CB and the dependency level of SCI survivors is significantly correlated (p < 0.01) with an increase in the need of psychological support and a decrease in perceived health and quality of life.
Caregiving for people with SCI implies the occurrence of CB. The contribution of caregivers should be recognised and supported with tailored relief interventions.
评估脊髓损伤（SCI）患者照料者的照料负担（CB），并探讨照料负担的心理影响。
横断面研究。对55名SCI患者的家庭照料者进行了一组结构化问卷调查。采用改良巴氏指数评估受照料者的独立性。对照料者负担量表进行修改并用于评估CB。采用家庭压力问卷简表测量CB的心理影响。采用简明健康状况调查量表评估参与者的健康状况。
CB主要影响与时间管理、照料者身体状况及其个人失败感相关的领域。CB水平的升高和SCI幸存者的依赖程度与心理支持需求的增加以及感知健康和生活质量的下降显著相关（p < 0.01）。
照料SCI患者意味着会出现CB。应认识到照料者的贡献，并通过量身定制的缓解干预措施给予支持。
