Conti Alessio, Clari Marco, Garrino Lorenza, Maitan Patrizia, Scivoletto Giorgio, Cavallaro Lucia, Bandini Barbara, Mozzone Silvia, Vellone Ercole, Frigerio Simona
A.O.U. Città della Salute e della Scienza Hospital of Turin, Turin, Italy.
University of Rome "Tor Vergata", Rome, Italy.
Spinal Cord. 2019 Jan;57(1):75-82. doi: 10.1038/s41393-018-0179-7. Epub 2018 Aug 1.
Validation cross-sectional study.
Even though caregiver burden (CB) represents a well-recognised concern among caregivers of people with a spinal cord injury (SCI), there are no specific questionnaires designed for its evaluation. This study aimed to assess the psychometric properties of the Caregiver Burden Inventory in Spinal Cord Injury (CBI-SCI), which was modified from its original version, and specifically its construct and reliability.
Multicentre study in four urban spinal units across Italy. The CBI-SCI was administered to family caregivers in outpatient clinics.
CBI-SCI was administered in a toolset composed of a sociodemographic questionnaire, the Family Strain Questionnaire-Short Form (FSQ-SF), the Short Form-36 (SF-36), and the Modified Barthel Index (MBI). The CBI-SCI construct validity was assessed through an exploratory factor analysis. The internal consistency of the questionnaire was examined using Cronbach's alpha (α) coefficient for the total scale and its subscales. Concurrent validity was evaluated performing Pearson's correlation coefficient with all instruments included in the toolset.
The CBI-SCI was administered to 176 participants from February 2016 to September 2017. Factor analysis highlighted the five-factored structure of the questionnaire. The total scale Cronbach's α was 0.91 (p < 0.001). All the five subscales of CBI-SCI showed an acceptable internal consistency, ranging from 0.76 to 0.91 (p < 0.001). Pearson's correlation coefficients of the CBI-SCI with all the administered instruments were statistically significant (p < 0.001), showing congruent relations.
The CBI-SCI, due to its validity and reliability, may represent a valuable instrument to evaluate the CB longitudinally in SCI.
验证性横断面研究。
尽管照顾者负担（CB）在脊髓损伤（SCI）患者的照顾者中是一个广为人知的问题，但尚无专门用于评估它的问卷。本研究旨在评估脊髓损伤照顾者负担量表（CBI-SCI）的心理测量特性，该量表是从其原始版本修改而来的，尤其关注其结构和信度。
在意大利四个城市脊髓损伤治疗单位进行的多中心研究。CBI-SCI应用于门诊诊所的家庭照顾者。
CBI-SCI应用于一个工具集中，该工具集包括一份社会人口学问卷、家庭压力问卷简表（FSQ-SF）、简明健康状况调查量表（SF-36）和改良巴氏指数（MBI）。通过探索性因素分析评估CBI-SCI的结构效度。使用Cronbach's α系数检查问卷总量表及其子量表的内部一致性。通过与工具集中所有工具进行Pearson相关系数分析来评估同时效度。
2016年2月至2017年9月，176名参与者接受了CBI-SCI评估。因素分析突出了该问卷的五因素结构。总量表的Cronbach's α为0.91（p < 0.001）。CBI-SCI的所有五个子量表均显示出可接受的内部一致性，范围从0.76至0.91（p < 0.001）。CBI-SCI与所有所应用工具的Pearson相关系数均具有统计学意义（p < 0.001），显示出一致的关系。
由于其效度和信度，CBI-SCI可能是纵向评估脊髓损伤患者照顾者负担的有价值工具。
