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本文引用的文献

1
Quality of life and burden of caregivers of children and adolescents with disabilities.残疾儿童和青少年的生活质量及照顾者负担
Spec Care Dentist. 2019 Jul;39(4):380-388. doi: 10.1111/scd.12400. Epub 2019 Jun 6.
2
The effect of the burden of caregiving for people with spinal cord injury (SCI): a cross-sectional study.脊髓损伤患者护理负担的影响:一项横断面研究。
Ann Ist Super Sanita. 2018 Jul-Sep;54(3):185-193. doi: 10.4415/ANN_18_03_04.
3
Burden and Quality of Life of Family Caregivers of Stroke Patients.中风患者家庭照顾者的负担与生活质量
Occup Ther Health Care. 2018 Apr;32(2):154-171. doi: 10.1080/07380577.2018.1449046. Epub 2018 Mar 26.
4
Responding to the World Health Organization Global Disability Action Plan in Egypt: A Technical Consultancy to develop a National Disability, Health and Rehabilitation Plan.响应世界卫生组织全球残疾行动计划在埃及:制定国家残疾、健康和康复计划的技术咨询。
J Rehabil Med. 2018 Apr 18;50(4):333-337. doi: 10.2340/16501977-2307.
5
Psychometric characteristics of the caregiver burden inventory in caregivers of adults with heart failure.成人心力衰竭患者照料者的照料负担量表的心理测量学特征
Eur J Cardiovasc Nurs. 2017 Aug;16(6):502-510. doi: 10.1177/1474515117693890. Epub 2017 Feb 10.
6
Component Analysis versus Common Factor Analysis: A Case of Disputed Authorship.成分分析与共同因素分析:一个关于作者身份争议的案例。
Multivariate Behav Res. 1990 Jan 1;25(1):29-31. doi: 10.1207/s15327906mbr2501_2.
7
The modifying role of caregiver burden on predictors of quality of life of caregivers of hospitalized chronic stroke patients.照顾者负担对住院慢性卒中患者照顾者生活质量预测因素的调节作用。
Disabil Health J. 2015 Oct;8(4):619-25. doi: 10.1016/j.dhjo.2015.05.005. Epub 2015 May 29.
8
Disability in post-earthquake Haiti: prevalence and inequality in access to services.海地地震后的残疾情况:服务获取方面的患病率与不平等现象
Disabil Rehabil. 2015;37(12):1082-9. doi: 10.3109/09638288.2014.956186. Epub 2014 Sep 2.
9
Caregiver burden is associated with disability in schizophrenia: results of a study from a rural setting of south India.照顾者负担与精神分裂症患者的残疾有关:来自印度南部农村地区的一项研究结果。
Int J Soc Psychiatry. 2015 Mar;61(2):157-63. doi: 10.1177/0020764014537637. Epub 2014 Jun 19.
10
Quality of life of parents/caregivers of children and adolescents with Down syndrome.唐氏综合征儿童及青少年的父母/照料者的生活质量。
J Soc Bras Fonoaudiol. 2011 Dec;23(4):321-7. doi: 10.1590/s2179-64912011000400006.

埃及农村地区残疾人照顾者负担的决定因素。

Determinants of caregiver burden of persons with disabilities in a rural district in Egypt.

机构信息

Department of Public Health and Preventive Medicine, Faculty of Medicine, Minia University, Minia, Egypt.

出版信息

BMC Public Health. 2020 Jul 23;20(1):1156. doi: 10.1186/s12889-020-09266-4.

DOI:10.1186/s12889-020-09266-4
PMID:32703271
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7376710/
Abstract

BACKGROUND

Family caregivers are critical partners in the plan of care of people with disabilities. The study aims to demonstrate the factor structure and internal consistency of the Caregiver Burden Inventory (CBI) among the studied caregivers of disabled persons and to determine the effects of patients' and caregivers' characteristics on the burden and its dimensions.

METHODS

A cross-sectional study among 260 family caregivers of disabled patients was carried out in a randomly chosen rural area, Minia, Egypt, 2019. Exploratory factor analysis (EFA) was conducted to determine the factorial validity of the CBI. Multiple linear regression was used to identify the significant factors affecting the burden.

RESULTS

Factor analysis resulted in a five-factor solution using 20 items (four for each dimension) accounting for 72.7% of the total variance. The CBI and its dimensions showed high internal consistency (Cronbach's alpha value > 0.70). Education of caregiver, family income, mental impairments, and mixed disabilities were significant predictors of total CBI burden.

CONCLUSIONS

CBI is an effective multidimensional measure of the caregiver burden of disabled subjects. Caregivers experienced a distinct level of burden that is determined by caregiver and care recipient characteristics. Therefore, support and individualized counseling services should be optimized.

摘要

背景

家庭照顾者是残疾人士护理计划中的重要伙伴。本研究旨在展示残疾人士照顾者的 caregiver 负担量表(CBI)的结构和内部一致性,并确定患者和照顾者特征对负担及其维度的影响。

方法

2019 年,在埃及米尼亚省一个随机选择的农村地区,对 260 名残疾患者的家庭照顾者进行了横断面研究。采用探索性因素分析(EFA)确定 CBI 的因子有效性。采用多元线性回归分析确定影响负担的显著因素。

结果

因素分析得出了一个包含 20 个项目(每个维度 4 个)的五因素解决方案,占总方差的 72.7%。CBI 及其维度具有较高的内部一致性(Cronbach's alpha 值>0.70)。照顾者的教育程度、家庭收入、精神障碍和混合残疾是 CBI 总负担的显著预测因素。

结论

CBI 是残疾受试者照顾者负担的有效多维衡量工具。照顾者经历了特定程度的负担,这取决于照顾者和护理接受者的特征。因此,应优化支持和个性化咨询服务。