*Participation and Knowledge Translation in Childhood Disability Lab, School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada; ((†))Department of Pediatrics, Montreal Children's Hospital, Centre for Interdisciplinary Research in Rehablitation (CRIR), Montreal, QC, Canada.
*Participation and Knowledge Translation in Childhood Disability Lab, School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada.
Semin Pediatr Neurol. 2018 Oct;27:53-61. doi: 10.1016/j.spen.2018.03.007. Epub 2018 Mar 23.
Children with neurologic conditions benefit from international conventions, and national treaties, policies and regulations that safeguard their human rights. These regulations also exist to serve as guidance in the creation of comprehensive systems of care, inclusive environments, accessible societies and communities that allow these children to thrive and to achieve the best of their capacities. This narrative review of issues related to human rights and advocacy in pediatric neurologic disabilities will provide an overview of the human rights conventions that relate to children with disabilities, and the most current approaches implicating health care providers in rights promotion for these individuals and their families. We also suggest venues for professionals to advocate for their patients, and suggest strategies to consider rights-based approaches as a mean to provide holistic care in a social neurology framework.
患有神经系统疾病的儿童受益于国际公约、国家条约、政策和法规，这些法规保障了他们的人权。这些规定还为创建全面的护理系统、包容的环境、无障碍的社会和社区提供了指导，使这些儿童能够茁壮成长，发挥最大潜力。本文对儿科神经残疾相关的人权和宣传问题进行了综述，概述了与残疾儿童有关的人权公约，以及当前最引人关注的涉及医疗保健提供者为这些个人及其家庭促进权利的方法。我们还为专业人员为其患者进行宣传提供了场所，并建议考虑基于权利的方法，作为在社会神经病学框架内提供整体护理的一种手段。
