2020年炎症性肠病全球论坛：一项关于医疗质量的国际患者调查结果

IBD2020 global forum: results of an international patient survey on quality of care.

作者信息

Irving Peter, Burisch Johan, Driscoll Richard, Olsson Mats, Fullarton John R, Rodgers-Gray Barry S, Travis Simon Pl

机构信息

Department of Gastroenterology, Guy's and St Thomas' NHS Foundation Trust, London, UK.

Digestive Disease Centre, Medical Section, Herlev University Hospital, Copenhagen, Denmark.

出版信息

Intest Res. 2018 Oct;16(4):537-545. doi: 10.5217/ir.2018.00041. Epub 2018 Oct 10.

BACKGROUND/AIMS: IBD2020 is a global forum for standards of care in inflammatory bowel disease (IBD). The aim of the IBD2020 survey was to identify and describe variations in quality care of IBD.

METHODS

Patients with IBD from Finland, Italy, France, Canada, Germany, UK, Spain and Sweden were surveyed during 2013 to 2014, covering: disease characteristics; impact on life and work; organization and perceived quality of care.

RESULTS

Seven thousand five hundred and seven patients participated (median age, 39 years [range, 10-103 years]; 2,354 male [31.4%]), including 4,097 (54.6%) with Crohn's disease (CD) and 3,410 (45.4%) with ulcerative colitis (UC). Median time from symptom onset to diagnosis was 1 year for both CD (range, 0-47 years) and UC (range, 0-46 years), with no clear evidence of improvement in diagnostic delay over the preceding 24 years. Half of the patients (3,429; 50.0%) rated their care as "excellent" or "very good," with similar results for CD and UC across countries. Five factors were significantly (P<0.01) associated with perceived good quality of care: quality of specialist communication; review consultation being long enough; failure to share information; no access to a dietician; speed of advice.

CONCLUSIONS

The IBD2020 survey has highlighted areas related to quality of care of IBD from the patients' perspective, with scope for improvement.

背景/目的：IBD2020是炎症性肠病（IBD）护理标准的全球论坛。IBD2020调查的目的是识别和描述IBD优质护理中的差异。

方法

在2013年至2014年期间，对来自芬兰、意大利、法国、加拿大、德国、英国、西班牙和瑞典的IBD患者进行了调查，涵盖：疾病特征；对生活和工作的影响；护理的组织和感知质量。

结果

7507名患者参与了调查（中位年龄39岁[范围10 - 103岁]；男性2354名[31.4%]），其中4097名（54.6%）患有克罗恩病（CD），3410名（45.4%）患有溃疡性结肠炎（UC）。CD（范围0 - 47年）和UC（范围0 - 46年）从症状出现到诊断的中位时间均为1年，没有明确证据表明在过去24年中诊断延迟有所改善。一半的患者（3429名；50.0%）将他们接受的护理评为“优秀”或“非常好”，各国的CD和UC患者结果相似。五个因素与感知到的优质护理显著相关（P<0.01）：专科医生沟通质量；复诊咨询时间足够长；信息未共享；无法获得营养师服务；建议的速度。