“过我想要的生活”：为规划与智障及有复杂支持需求者的互动而构建的框架
"Living the life I want": A framework for planning engagement with people with intellectual disability and complex support needs.
作者信息
Dew Angela, Collings Susan, Dillon Savage Isabella, Gentle Emma, Dowse Leanne
机构信息
Intellectual Disability Behaviour Support Program, Faculty of Arts and Social Sciences, UNSW Sydney, Sydney, New South Wales, Australia.
Open Adoption Centre, The University of Sydney, Sydney, New South Wales, Australia.
出版信息
J Appl Res Intellect Disabil. 2019 Mar;32(2):401-412. doi: 10.1111/jar.12538. Epub 2018 Oct 24.
BACKGROUND
Self-determination involves autonomy, agency, choice and control. This study investigated how these aspects of self-determination relate to engaging people with intellectual disability and complex support needs in setting goals and making plans.
METHOD
Body mapping was used to understand the planning experiences of 30 adults with intellectual disability and complex support needs. Each participant created two body maps using a guided group-based process. Visual and text data were thematically analysed and a framework for planning engagement developed.
RESULTS
The framework identifies the centrality of having a well-developed sense of self which includes insight, motivation and agency, and which is shaped by contextual barriers and facilitators and influenced by helpful and unhelpful support.
CONCLUSIONS
A well-developed sense of self and ability to harness resources and people is fundamental to the ability of individuals with intellectual disability and complex support needs articulating goals, identifying aspirations, and attaining valued outcomes.
背景
自我决定涉及自主、能动性、选择和控制。本研究调查了自我决定的这些方面如何与让有智力残疾和复杂支持需求的人参与设定目标和制定计划相关。
方法
身体绘图被用于了解30名有智力残疾和复杂支持需求的成年人的规划经历。每位参与者通过基于小组的引导过程创建了两张身体图。对视觉和文本数据进行了主题分析，并制定了一个规划参与框架。
结果
该框架确定了拥有成熟自我意识的核心地位，这种自我意识包括洞察力、动机和能动性，并且受到情境障碍和促进因素的塑造，以及有益和无益支持的影响。
结论
成熟的自我意识以及利用资源和人员的能力对于有智力残疾和复杂支持需求的个体阐明目标、确定愿望并实现有价值的成果的能力至关重要。
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