Fernandes Larissa de Siqueira, Calado Camila, Araujo Claudia Affonso Silva
Instituto Coppead de Administração, Universidade Federal do Rio de Janeiro (UFRJ). R. Pascoal Lemme 355, Ilha do Fundão. 21941-918 Rio de Janeiro RJ Brasil.
Escola de Comunicação, UFRJ. Rio de Janeiro RJ Brasil.
Cien Saude Colet. 2018 Oct;23(10):3357-3368. doi: 10.1590/1413-812320182310.14122018.
This study aims to understand how online communities can contribute to increasing the adherence of chronic patients to the treatment prescribed by the physician in Brazil. For this purpose, we applied the netnography method to analyze the community Diabetes: vivendo e aprendendo - troca de informações (free translation: "Diabetes: living and learning - information exchange"), considering the dimensions of adherence proposed by the World Health Organization (WHO) as a theoretical framework. The analysis shows the influence of cyberculture on health and disease processes, resulting in changes in physician-patient relationships, patient empowerment, and individual management of own chronic condition. The results also showed a positive influence of the interactions established in the community on the multidimensional factors of the adherence model proposed by the WHO1, also leading to the possibility of including a sixth related to connectivity. The primary motivations identified for community participation were access to information on the disease and treatment, the sharing of experiences and social support. Thus, the proposition of health policies that help chronic patients meet these needs tends to contribute to increased adherence to treatment.
本研究旨在了解在线社区如何有助于提高巴西慢性病患者对医生所开处方治疗的依从性。为此，我们应用网络民族志方法来分析“糖尿病：生活与学习——信息交流”社区，将世界卫生组织（WHO）提出的依从性维度作为理论框架。分析表明网络文化对健康和疾病过程的影响，导致医患关系、患者赋权以及个体对自身慢性病的管理发生变化。结果还显示，社区中建立的互动对WHO提出的依从性模型的多维因素有积极影响，这也使得有可能纳入与连通性相关的第六个维度。确定的社区参与主要动机是获取有关疾病和治疗的信息、分享经验以及获得社会支持。因此，制定有助于慢性病患者满足这些需求的卫生政策，往往有助于提高治疗依从性。
