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难以接触群体的肌肉骨骼疾病患者的自我管理:一项定性患者访谈研究。

Self-management of a musculoskeletal condition for people from harder to reach groups: a qualitative patient interview study.

机构信息

Faculty of Health Sciences, University of Southampton, Southampton, UK.

Centre Medical Education Barts and The London School of Medicine and Dentistry Queen Mary, University of London, London, UK.

出版信息

Disabil Rehabil. 2019 Dec;41(25):3034-3042. doi: 10.1080/09638288.2018.1485182. Epub 2018 Oct 28.

Abstract

This study recorded the functional health literacy levels of people with musculoskeletal (MSK) conditions from harder to reach groups and explored their experiences in engaging with health care professionals to self-manage their MSK condition. We recruited participants, identified by key health and social care contacts as likely to have lower health literacy levels, and used semi-structured interviews to collect data. Thematic analysis was used to identify the main key themes arising from the transcribed interviews. Eighteen participants were identified and recruited from harder to reach community populations, 10 were scored as having inadequate functional health literacy on the Short Form Rapid Estimate of Adult Literacy Measure. Three themes were identified in relation to participants' experiences of MSK self-management approaches: engaging with health care services; interpreting the health care providers' message; and facilitating participation in MSK self-management. Our findings indicate that people with a MSK condition, from harder to reach groups, experience multi-morbidity, find health care systems complicated and hear from health care professionals that their MSK condition cannot be cured. People interpreted that a lack of cure meant that nothing could be done to help their MSK pain. Engaging with self-management strategies was not seen as a priority for our participants. Strategies to simplify health communication, more time to process health information and supportive social networks helped our participants to understand and manage their MSK health on a day-to-day basis. Implications for RehabilitationMSK conditions are long term and prevalent in the UK with substantial impact on people's daily life.Currently self-management strategies for MSK conditions are poorly communicated and many patients believe that nothing can be done to help their MSK pain.Good clinician communication that supports self-management is needed so that key messages can be effectively understood and used by patients with a range of literacy skills.Health services need to be even more accessible to help all individuals from a range of backgrounds better self-manage their MSK conditions.

摘要

本研究记录了肌肉骨骼(MSK)疾病患者的功能性健康素养水平,这些患者来自较难接触的群体,并探讨了他们与医疗保健专业人员互动以自我管理 MSK 疾病的经验。我们招募了参与者,这些参与者是通过主要的健康和社会保健联系人确定的,他们可能具有较低的健康素养水平,并使用半结构化访谈收集数据。主题分析用于确定从转录访谈中出现的主要关键主题。从较难接触的社区人群中确定并招募了 18 名参与者,其中 10 名在简短的成人读写能力快速估计量表中被评为功能性健康素养不足。在与参与者的 MSK 自我管理方法的经验相关的三个主题:与医疗保健服务的互动;解释医疗保健提供者的信息;促进参与 MSK 自我管理。我们的研究结果表明,来自较难接触群体的 MSK 疾病患者患有多种疾病,他们发现医疗保健系统很复杂,并从医疗保健专业人员那里得知他们的 MSK 疾病无法治愈。人们认为缺乏治愈意味着没有任何办法可以帮助他们缓解 MSK 疼痛。对我们的参与者来说,参与自我管理策略并不是当务之急。简化健康沟通的策略、更多时间来处理健康信息和支持性的社交网络帮助我们的参与者理解和管理他们的 MSK 健康。对康复的影响 MSK 疾病在英国长期存在且普遍存在,对人们的日常生活有重大影响。目前,MSK 疾病的自我管理策略沟通不畅,许多患者认为没有任何办法可以帮助他们缓解 MSK 疼痛。需要有良好的临床医生沟通来支持自我管理,以便具有不同读写能力的患者能够有效地理解和使用关键信息。医疗服务需要更加普及,以帮助来自不同背景的所有人更好地自我管理他们的 MSK 疾病。

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