Department of Rheumatology, National Advisory Unit on Rehabilitation in Rheumatology, Diakonhjemmet Hospital, Oslo, Norway.
School of Healthcare, University of Leeds, Leeds, UK and Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK.
Ann Rheum Dis. 2015 Jun;74(6):954-62. doi: 10.1136/annrheumdis-2014-206807. Epub 2015 Mar 3.
The task force aimed to: (1) develop evidence-based recommendations for patient education (PE) for people with inflammatory arthritis, (2) identify the need for further research on PE and (3) determine health professionals' educational needs in order to provide evidence-based PE.
A multidisciplinary task force, representing 10 European countries, formulated a definition for PE and 10 research questions that guided a systematic literature review (SLR). The results from the SLR were discussed and used as a basis for developing the recommendations, a research agenda and an educational agenda. The recommendations were categorised according to level and strength of evidence graded from A (highest) to D (lowest). Task force members rated their agreement with each recommendation from 0 (total disagreement) to 10 (total agreement).
Based on the SLR and expert opinions, eight recommendations were developed, four with strength A evidence. The recommendations addressed when and by whom PE should be offered, modes and methods of delivery, theoretical framework, outcomes and evaluation. A high level of agreement was achieved for all recommendations (mean range 9.4-9.8). The task force proposed a research agenda and an educational agenda.
The eight evidence-based and expert opinion-based recommendations for PE for people with inflammatory arthritis are intended to provide a core framework for the delivery of PE and training for health professionals in delivering PE across Europe.
该工作组旨在：(1)为炎症性关节炎患者制定基于证据的患者教育(PE)建议；(2)确定进一步开展 PE 研究的必要性；(3)确定卫生专业人员的教育需求，以提供基于证据的 PE。
一个代表 10 个欧洲国家的多学科工作组，制定了一个 PE 的定义和 10 个研究问题，这些问题指导了一项系统文献回顾(SLR)。SLR 的结果进行了讨论，并作为制定建议、研究议程和教育议程的基础。建议根据证据的等级和强度进行分类，从 A(最高)到 D(最低)。工作组成员对每项建议的同意程度从 0(完全不同意)到 10(完全同意)进行评分。
基于 SLR 和专家意见，制定了八项建议，其中四项具有 A 级证据强度。建议涉及何时以及由谁提供 PE、提供方式和方法、理论框架、结果和评估。所有建议都达成了高度一致(平均范围为 9.4-9.8)。工作组提出了研究议程和教育议程。
针对炎症性关节炎患者的八项基于证据和专家意见的 PE 建议旨在为欧洲各地的卫生专业人员提供一个提供 PE 和培训的核心框架。
