Grover Sandeep, Rina Kumari, Malhotra Pankaj, Khadwal Alka
1Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh, 160012 India.
2Department of Hematology, Postgraduate Institute of Medical Education and Research, Chandigarh, 160012 India.
Indian J Hematol Blood Transfus. 2018 Oct;34(4):612-617. doi: 10.1007/s12288-018-0957-6. Epub 2018 Apr 6.
To evaluate the positive aspects of caregiving and its sociodemographic and clinical correlates in family caregivers of patients with Acute Myeloblastic Leukaemia (AML). A total of 30 caregivers of the patients with AML were evaluated on the Scale for Positive Aspects of Caregiving Experience (SPACE), Family Burden Interview (FBI) and Schedule and Caregiver Strain Index (CSI). On the SPACE, the mean score was highest for the domain of motivation for the caregiving role, followed by the domain of 'caregiving personal gains', 'caregiver satisfaction' and least score was seen in the domain of 'self-esteem and social aspect of caring'. All the SPACE domains were negatively correlated with financial burden, disruption of routine family activities, disruption of family interaction, physical health and subjective burden domains of FBI. Effect on physical health of others domain of FBI correlated negatively with all domains of SPACE except 'self esteem and social aspect of caregiving'. FBI total objective burden was negatively correlated with motivation for caregiving role, caregiver satisfaction and total SPACE score. All SPACE domains were negatively correlated with adaptation and inconvenience domains and total CSI score. Lower level of positive caregiving experience is reported by caregivers who experience high level of caregiver burden.
评估急性髓细胞白血病(AML)患者家庭照顾者照顾行为的积极方面及其社会人口学和临床相关性。采用照顾经历积极方面量表(SPACE)、家庭负担访谈(FBI)和照顾者压力指数(CSI)对30名AML患者的照顾者进行评估。在SPACE量表上,照顾角色动机领域的平均得分最高,其次是“照顾个人收获”领域、“照顾者满意度”领域,“照顾自尊和社会方面”领域得分最低。SPACE所有领域均与FBI的经济负担、日常家庭活动中断、家庭互动中断、身体健康和主观负担领域呈负相关。FBI中对他人身体健康的影响领域与SPACE除“照顾自尊和社会方面”之外的所有领域呈负相关。FBI总客观负担与照顾角色动机、照顾者满意度和SPACE总分呈负相关。SPACE所有领域均与适应和不便领域及CSI总分呈负相关。照顾者负担水平高者报告的积极照顾经历水平较低。