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急性髓细胞白血病患者的照顾者负担

Caregiver Burden in the Patients of Acute Myeloblastic Leukemia.

作者信息

Grover Sandeep, Rina Kumari, Malhotra Pankaj, Khadwal Alka

机构信息

1Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh, 160012 India.

2Department of Hematology, Postgraduate Institute of Medical Education and Research, Chandigarh, 160012 India.

出版信息

Indian J Hematol Blood Transfus. 2019 Jul;35(3):437-445. doi: 10.1007/s12288-018-1048-4. Epub 2019 Jan 3.

Abstract

To study the caregiver burden and its correlates among the caregivers of adolescent and adult subjects with acute myeloblastic leukemia (AML). 30 caregivers of patients with AML were evaluated on family burden interview schedule (FBI), Caregiver Strain Index, multi-dimensional aspect of perceived social support scale, Cognitive-Behavioural Avoidance Scale, ways of coping checklist and General Health Questionnaire. Caregivers of patients with AML reported high caregiver burden (FBI objective burden score: 27.8; subjective burden score: 1.43). Among the various domains of FBI, the mean scores were highest for the domain of disruption of family activities and this was closely followed by disruption of family leisure. Patients with lower family income reported higher subjective and objective burden and were more overwhelmed. Patients belonging to lower socioeconomic status reported more financial burden. Caregiver burden was higher among caregivers who reported lower perceived social support, who more often used avoidance and escape as coping and less often used acceptability-responsibility and positive appraisal coping. Higher caregiver burden is associated with higher psychological morbidity. Caregivers of subjects with AML experience high level of caregiver burden and it is associated with lower social support and more often use maladaptive coping strategies.

摘要

研究青少年及成人急性髓细胞白血病(AML)患者照料者的照料负担及其相关因素。采用家庭负担访谈量表(FBI)、照料者压力指数、感知社会支持量表的多维方面、认知行为回避量表、应对方式清单和一般健康问卷对30名AML患者的照料者进行评估。AML患者的照料者报告了较高的照料负担(FBI客观负担得分:27.8;主观负担得分:1.43)。在FBI的各个领域中,家庭活动中断领域的平均得分最高,紧随其后的是家庭休闲中断。家庭收入较低的患者报告的主观和客观负担较高,且更不堪重负。社会经济地位较低的患者报告的经济负担更重。在报告感知社会支持较低、更多采用回避和逃避作为应对方式且较少采用接受-责任和积极评价应对方式的照料者中,照料负担更高。更高的照料负担与更高的心理发病率相关。AML患者的照料者经历着高水平的照料负担,这与较低的社会支持以及更常使用适应不良的应对策略有关。

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