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网上的阴茎癌信息:大海捞针。

Penile cancer information on the internet: a needle in a haystack.

机构信息

Department of Surgery, Austin Hospital, University of Melbourne, Melbourne, Vic., Australia.

Young Urology Researchers Organization, Melbourne, Vic., Australia.

出版信息

BJU Int. 2018 Nov;122 Suppl 5:22-26. doi: 10.1111/bju.14532. Epub 2018 Oct 29.

DOI:10.1111/bju.14532
PMID:30370985
Abstract

INTRODUCTION

Penile cancer is a disease with high morbidity and mortality and is rare in developed countries. In the developing world, the incidence is significantly higher, and accounts for 1-2% of malignant disease in men. Penile cancer is associated with delayed diagnosis, often due to psychological factors. Web based resources are especially important when obtaining information from health professionals is challenging, such as when symptoms are embarrassing or stigmatised.

OBJECTIVE

To assess the quality of information about penile cancer on the internet and to compare the quality of information from developed countries with developing countries.

METHOD

Health on the Net (HON) principles were applied to websites using the Google search engine imbedded with HON toolbar. This was used to assess 750 websites in English, French, German, Spanish and Portuguese by two independent examiners using the key word 'penile cancer' in all languages. The first 150 websites in each language were analysed. Further analysis was completed comparing results between languages and site sponsors.

RESULTS

Of the 750 websites analysed, 10.4% were HON accredited. There were significantly more HON accredited websites in English and French compared with Portuguese (P = 0.009 and P = 0.0007). A total of 45% of websites were sponsored by Commercial enterprise and 27% were sponsored by Government organisations.

CONCLUSION

A lack of validation of penile cancer internet resources should be appreciated by clinicians. Additionally, there is a discrepancy in the quality of websites between languages, with significantly more resources available in the developed world. Limited available web resources in Spanish and Portuguese contribute to disparities in information access and disease outcomes.

摘要

简介

阴茎癌是一种发病率和死亡率都很高的疾病,在发达国家较为少见。在发展中国家,发病率则显著更高,占男性恶性疾病的 1-2%。阴茎癌往往由于心理因素导致诊断延误。在从卫生专业人员获取信息具有挑战性时,如症状令人尴尬或受到污名化时,基于网络的资源尤其重要。

目的

评估互联网上有关阴茎癌信息的质量,并比较发达国家和发展中国家信息质量的差异。

方法

应用健康网络(HON)原则,使用嵌入 HON 工具栏的谷歌搜索引擎对英语、法语、德语、西班牙语和葡萄牙语的 750 个网站进行评估。两位独立审查员使用所有语言中的关键字“penile cancer”分析每种语言的前 150 个网站。进一步分析了语言和网站赞助商之间的结果比较。

结果

在分析的 750 个网站中,有 10.4%获得了 HON 认证。英语和法语网站获得 HON 认证的比例明显高于葡萄牙语(P=0.009 和 P=0.0007)。商业企业赞助的网站共计 45%,政府组织赞助的网站占 27%。

结论

临床医生应该认识到阴茎癌互联网资源缺乏验证的问题。此外,不同语言之间网站质量存在差异,发达国家的资源明显更为丰富。西班牙语和葡萄牙语可用的网络资源有限,导致信息获取和疾病结果的差异。

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