a Center for Alzheimer's Disease, Institute of Psychiatry, Universidade Federal do Rio de Janeiro , Rio de Janeiro , Brazil.
b Norwegian Advisory Unit for Aging and Health Vestfold Health Trust , Tønsberg , Norway.
Aging Ment Health. 2019 Oct;23(10):1292-1299. doi: 10.1080/13607863.2018.1488945. Epub 2018 Nov 8.
We aim to assess different objects of awareness of disease of people with Alzheimer's disease (AD) in mild and moderate stages Semi-structured interviews were conducted with 34 participants with AD and qualitative analyses were used to analyze the participants' reports. Cognitive impairment was the most peserved area of awareness. The participants' explanations were mainly categorized as biological/genetic and psychosocial causes. Also, awareness of social/emotional functioning and interpersonal relationships were generally well-preserved in this group. Among those who noticed some alterations in social life, there were reports of the feeling of being exposed and how some cognitive symptoms interfere with their functioning. In the emotional state domains, most of the participants reported more sadness than before the onset of dementia. Although most participants noticed a change in routine and the impact on daily life, many did not notice the need of help for general tasks. Our results underpin that most people with AD were able to provide their own subjective report of their experience of living with a disease. Participants' self-reports demonstrated the differences across domains, and this information may contribute to a better understanding of awareness of disease in AD.
我们旨在评估轻度和中度阶段阿尔茨海默病（AD）患者对疾病不同方面的认知。对 34 名 AD 患者进行了半结构化访谈，并采用定性分析方法对参与者的报告进行了分析。认知障碍是最受保护的认知领域。参与者的解释主要分为生物学/遗传学和心理社会原因。此外，该组人群的社会/情感功能和人际关系意识通常保持良好。在那些注意到社交生活发生一些变化的人中，有人报告说他们感到被暴露了，一些认知症状如何干扰他们的功能。在情绪状态领域，大多数参与者报告说比痴呆症发作前更悲伤。尽管大多数参与者注意到日常生活规律和日常生活的影响，但许多人没有注意到他们需要帮助完成一般任务。我们的研究结果表明，大多数 AD 患者能够提供自己对患病生活经历的主观报告。参与者的自我报告展示了不同领域的差异，这些信息可能有助于更好地了解 AD 中的疾病认知。
