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与电子健康记录交换个人健康数据:用于患者生成健康数据和日常生活观察的标准化信息模型。

Exchanging personal health data with electronic health records: A standardized information model for patient generated health data and observations of daily living.

机构信息

Department of Computer Science, City University of London, Northampton Square, London EC1V 0HB, United Kingdom.

Department of Computer Science, City University of London, Northampton Square, London EC1V 0HB, United Kingdom; School of Computing, National College of Ireland, Mayor Street, North Dock, Dublin 1, D01 Y300, Ireland.

出版信息

Int J Med Inform. 2018 Dec;120:116-125. doi: 10.1016/j.ijmedinf.2018.10.006. Epub 2018 Oct 16.

DOI:10.1016/j.ijmedinf.2018.10.006
PMID:30409336
Abstract

OBJECTIVE

The development of a middleware information model to facilitate better interoperability between Personal and Electronic Health Record systems in order to allow exchange of Patient Generated Health Data and Observations of Daily Leaving between patients and providers in order to encourage patient self-management.

MATERIALS AND METHODS

An information model based on HL7 standards for interoperability has been extended to support PGHD and ODL data types. The new information models uses HL7 CDA to represent data, is instantiated as a Protégé ontology and uses a set of mapping rules to transfer data between Personal and Electronic Health Record systems.

RESULTS

The information model was evaluated by executing a set of use case scenarios containing data exported from three consumer health apps, transformed to CDA according to developed mapping rules and validated against a CDA schema. This allowed various challenges to emerge as well as revealed gaps in current standards in use and the information model has been refined accordingly.

DISCUSSION AND CONCLUSION

Our proposed middleware solution offers a number of advantages. When modifications are made to either a Personal or Health Electronic Health Record system or any integrated consumer app, they can be incorporated by altering only the instantiation of the information model. Our proposition uses current standards in use such as CDA. The solution is applicable to any EHR system with HL7 CDA support.

摘要

目的

开发中间件信息模型,以促进个人和电子健康记录系统之间更好的互操作性,从而允许患者和提供者之间交换患者生成的健康数据和日常活动观察结果,以鼓励患者自我管理。

材料和方法

基于 HL7 标准的互操作性信息模型已扩展,以支持 PGHD 和 ODL 数据类型。新的信息模型使用 HL7 CDA 来表示数据,实例化为 Protege 本体,并使用一组映射规则在个人和电子健康记录系统之间传输数据。

结果

通过执行一组用例场景来评估信息模型,这些场景包含从三个消费者健康应用程序导出的数据,根据开发的映射规则转换为 CDA,并根据 CDA 模式进行验证。这使得各种挑战浮出水面,并揭示了当前使用的标准中的差距,信息模型也相应地得到了改进。

讨论和结论

我们提出的中间件解决方案有几个优点。当对个人或电子健康记录系统或任何集成的消费者应用程序进行修改时,可以通过仅更改信息模型的实例化来进行修改。我们的提议使用当前使用的标准,如 CDA。该解决方案适用于任何具有 HL7 CDA 支持的电子健康记录系统。

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