Ghesquiere Angela, Bagaajav Ariunsanaa, Metzendorf Marguerite, Bookbinder Marilyn, Gardner Daniel S
1 Brookdale Center for Healthy Aging, Hunter College of the City University of New York, New York, NY, USA.
2 Silberman School of Social Work, Hunter College of the City University of New York, New York, NY, USA.
Am J Hosp Palliat Care. 2019 May;36(5):370-378. doi: 10.1177/1049909118812025. Epub 2018 Nov 14.
: A sizable minority of those who lose a loved one in hospice will experience symptoms of bereavement-related mental health disorders. Though hospices offer services to bereaved informal caregivers (family members or friends) of patients, little is known about services offered or interest in them. Therefore, we sought to assess services offered by hospice staff and interest expressed by bereaved informal caregivers with symptoms of depression, anxiety, or complicated grief (CG).
: De-identified electronic bereavement care charts of 3561 informal caregivers who lost someone in a large urban metropolitan hospice from October 1, 2015, to June 30, 2016, were reviewed.
: Of bereaved informal caregivers in the sample, 9.4% (n = 333) were positive for symptoms of depression, anxiety, or CG. The symptom-positive family members/friends were more likely than other family members/friends to be offered mailings, one-to-one counseling, telephone calls, and reference material. However, interest in most services by symptom-positive caregivers was low, with only 6% interested in one-to-one counseling and 7% interested in outside referral.
: The findings suggest that hospices offer a range of services to family members or friends with symptoms of anxiety, depression, and CG, but that there can be a gap between what is offered and in the interest levels of the bereaved. Engagement with symptomatic family members and friends could be enhanced in future work.
在临终关怀机构失去亲人的人中，有相当一部分会出现与丧亲相关的心理健康障碍症状。尽管临终关怀机构为患者的丧亲非正式照料者（家庭成员或朋友）提供服务，但对于所提供的服务或他们对此的兴趣却知之甚少。因此，我们试图评估临终关怀机构工作人员提供的服务以及有抑郁、焦虑或复杂悲伤（CG）症状的丧亲非正式照料者所表达的兴趣。
回顾了2015年10月1日至2016年6月30日期间在一个大型城市临终关怀机构失去亲人的3561名非正式照料者的匿名电子丧亲护理记录。
在样本中的丧亲非正式照料者中，9.4%（n = 333）有抑郁、焦虑或CG症状呈阳性。有症状的家庭成员/朋友比其他家庭成员/朋友更有可能收到邮件、获得一对一咨询、接到电话并得到参考资料。然而，有症状的照料者对大多数服务的兴趣较低，只有6%的人对一对一咨询感兴趣，7%的人对外部转诊感兴趣。
研究结果表明，临终关怀机构为有焦虑、抑郁和CG症状的家庭成员或朋友提供了一系列服务，但所提供的服务与丧亲者的兴趣水平之间可能存在差距。在未来的工作中，可以加强与有症状的家庭成员和朋友的互动。
