Van Mechelen Karen, Kessels Ilse, Simons Annik, Glazemakers Inge
Department of Medicine and Health Sciences, University of Antwerp, Universiteitsplein 1, 2610 Wilrijk, Belgium.
Department of Medicine and Health Sciences, University of Antwerp, Wilrijk, Belgium.
J Pediatr Endocrinol Metab. 2018 Dec 19;31(12):1335-1342. doi: 10.1515/jpem-2018-0219.
Background Parents of children with metabolic diseases report more parenting stress, anxiety, depression and dysfunctional parenting styles than parents of children without metabolic diseases. In addition, their children have more behavioral problems. Beside the fact that metabolic diseases are rare, they form a relatively large proportion in the morbidity and mortality of chronically ill children. Methods In this pilot study 14 parents of children with metabolic diseases, aged between 2.5 and 13 years, participated in a quasi-experimental pre-post-follow-up study. Results After participating in the Level 4 Group Triple P-program there were small effects in decreasing child behavioral problems and large effects in decreasing dysfunctional parenting styles. There was a moderate to large reduction of parental stress and a large reduction of parental anxiety. Only the effects on the behavioral problems and the parenting style 'laxness' were no longer significant at 6 months follow-up. Conclusions In summary it can be said that the existing Triple P-program has good effects, with a great degree of satisfaction, for parents of children with metabolic diseases in reducing dysfunctional parenting styles, parenting stress and behavioral problems of their children. One should not wait for a specialized program to reach these parents, but further research is necessary as a greater effect can be expected when this program is adapted to these parents.
与没有代谢疾病孩子的父母相比，患有代谢疾病孩子的父母报告了更多的育儿压力、焦虑、抑郁以及功能失调的育儿方式。此外，他们的孩子有更多行为问题。除了代谢疾病较为罕见这一事实外，它们在慢性病患儿的发病率和死亡率中占相当大的比例。方法：在这项试点研究中，14名患有代谢疾病孩子的父母，年龄在2.5岁至13岁之间，参与了一项准实验性的前后对照随访研究。结果：参与四级团体式积极育儿方案（Triple P-program）后，在减少孩子行为问题方面有小的效果，在减少功能失调的育儿方式方面有大的效果。父母压力有中度到大幅度的降低，父母焦虑有大幅度的降低。只有对行为问题和育儿方式“宽松”的影响在6个月随访时不再显著。结论：总之，可以说现有的积极育儿方案对患有代谢疾病孩子的父母在减少功能失调的育儿方式、育儿压力以及孩子的行为问题方面有良好效果，且满意度很高。不应等待专门的方案来接触这些父母，但有必要进行进一步研究，因为当该方案针对这些父母进行调整时，有望产生更大的效果。
