Ninewells Hospital and Medical School, University of Dundee, UK.
Centre for Child Health, NHS Tayside, Dundee, UK.
Seizure. 2018 Dec;63:71-78. doi: 10.1016/j.seizure.2018.11.002. Epub 2018 Nov 2.
To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.
Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users' experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.
PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people's dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.
These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs.
验证英国国家医疗服务体系儿科癫痫服务的患者报告体验测量工具（PREM）。
PREM 的第 1 部分记录了人口统计学和临床特征，第 2 部分收集了有关用户对服务体验的信息。第 2 部分围绕三个构念包含了十八个陈述：向服务使用者提供沟通和信息、工作人员的人际交往技巧以及诊所就诊和服务的可及性。使用表面效度、结构效度、内部可靠性和内部一致性来检查这些陈述的稳健性。PREM 由父母/照顾者和儿童/年轻人填写。
从 192 个审核单位中收到了 145 份 PREM；共收到 2335 份完成的表格；态度陈述由 750 名儿童/年轻人和 1550 名父母/照顾者填写。PREM 的表面效度良好。结构效度不确定；假设构念的验证性因素分析较弱。探索性因素分析为父母/照顾者数据集确定了一个四因素解决方案，为儿童/年轻人数据集确定了一个五因素解决方案。父母/照顾者数据集的内部可靠性良好，但儿童/年轻人数据集的内部可靠性较差。两个数据集的内部一致性均为中等水平。
这些发现表明，PREM 很可能是一种有效的工具，有可能从癫痫儿童的父母/照顾者那里获得各种可靠的观点。PREM 的结构效度应该在新的数据集中用验证性因素分析重新评估。需要与儿童/年轻人一起做更多的工作，设计能够捕捉他们特定需求的陈述。
