Department of Otolaryngology - Head and Neck Surgery, Cancer Center Amsterdam (CCA), VU University Medical Center, Amsterdam, The Netherlands.
Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, The Netherlands.
Head Neck. 2018 Dec;40(12):2633-2641. doi: 10.1002/hed.25358. Epub 2018 Nov 21.
The purpose of this study was to investigate unmet supportive care needs in patients treated with total laryngectomy and its associated factors.
In this cross-sectional study, 283 patients who underwent total laryngectomy completed questions on supportive care needs (Supportive Care Needs Survey [SCNS]). Median time since total laryngectomy surgery was 7 years (range 0-37 years). The prevalence of unmet supportive care needs and its associated factors were investigated using logistic regression analyses.
Unmet supportive care needs were highest for the head and neck cancer-specific functioning domain (53%), followed by the psychological (39%), physical and daily living (37%), health system, information, and patient support (35%), sexuality (23%), and lifestyle (5%) domains. Seventy-one percent reported at least one low, moderate, or high unmet need. Female sex, living alone, and having a voice prosthesis were positively associated with unmet needs on 1 domain (P < .05). A worse health-related quality of life was associated with unmet needs on all domains.
The majority of patients who underwent total laryngectomy report at least one low, moderate, or high unmet supportive care need.
本研究旨在探讨全喉切除术患者未满足的支持性护理需求及其相关因素。
在这项横断面研究中，283 名接受全喉切除术的患者完成了支持性护理需求问卷（支持性护理需求调查 [SCNS]）。全喉切除术的中位时间为 7 年（范围 0-37 年）。使用逻辑回归分析调查未满足的支持性护理需求及其相关因素。
头颈部癌症特定功能领域的未满足支持性护理需求最高（53%），其次是心理（39%）、身体和日常生活（37%）、卫生系统、信息和患者支持（35%）、性生活（23%）和生活方式（5%）领域。71%的患者报告至少有 1 项低、中或高未满足的需求。女性、独居和使用语音假体与 1 个领域的未满足需求呈正相关（P<.05）。健康相关生活质量较差与所有领域的未满足需求相关。
大多数接受全喉切除术的患者报告至少有 1 项低、中或高未满足的支持性护理需求。
