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生物医学研究中大数据二次使用的上下文匿名化:匿名化矩阵提案

Contextual Anonymization for Secondary Use of Big Data in Biomedical Research: Proposal for an Anonymization Matrix.

作者信息

Rumbold John, Pierscionek Barbara

机构信息

School of Science and Technology, Nottingham Trent University, Nottingham, United Kingdom.

出版信息

JMIR Med Inform. 2018 Nov 22;6(4):e47. doi: 10.2196/medinform.7096.

DOI:10.2196/medinform.7096
PMID:30467101
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6284146/
Abstract

BACKGROUND

The current law on anonymization sets the same standard across all situations, which poses a problem for biomedical research.

OBJECTIVE

We propose a matrix for setting different standards, which is responsive to context and public expectations.

METHODS

The law and ethics applicable to anonymization were reviewed in a scoping study. Social science on public attitudes and research on technical methods of anonymization were applied to formulate a matrix.

RESULTS

The matrix adjusts anonymization standards according to the sensitivity of the data and the safety of the place, people, and projects involved.

CONCLUSIONS

The matrix offers a tool with context-specific standards for anonymization in data research.

摘要

背景

现行的匿名化法律在所有情况下都设定了相同的标准,这给生物医学研究带来了问题。

目的

我们提出一个用于设定不同标准的矩阵,该矩阵能响应具体情况和公众期望。

方法

在一项范围界定研究中,对适用于匿名化的法律和伦理进行了审查。运用关于公众态度的社会科学以及匿名化技术方法的研究来制定一个矩阵。

结果

该矩阵根据数据的敏感性以及所涉及的地点、人员和项目的安全性来调整匿名化标准。

结论

该矩阵为数据研究中的匿名化提供了一个具有针对具体情况标准的工具。

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本文引用的文献

1
The Revised Declaration of Geneva: A Modern-Day Physician's Pledge.《日内瓦宣言修订版:当代医生的誓言》
JAMA. 2017 Nov 28;318(20):1971-1972. doi: 10.1001/jama.2017.16230.
2
Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data?对不当重新识别的刑事禁止:法律解决方案还是大数据的雷区?
J Bioeth Inq. 2017 Dec;14(4):527-539. doi: 10.1007/s11673-017-9806-9. Epub 2017 Sep 14.
3
Broad consent for health care-embedded biobanking: understanding and reasons to donate in a large patient sample.广泛同意将医疗保健与生物库相结合:在大型患者样本中了解和捐赠的原因。
Genet Med. 2018 Jan;20(1):76-82. doi: 10.1038/gim.2017.82. Epub 2017 Jun 22.
4
The Effect of the General Data Protection Regulation on Medical Research.《通用数据保护条例》对医学研究的影响
J Med Internet Res. 2017 Feb 24;19(2):e47. doi: 10.2196/jmir.7108.
5
Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.医学研究中的大数据与欧盟数据保护法:对同意或匿名化方法的挑战
Eur J Hum Genet. 2016 Jul;24(7):956-60. doi: 10.1038/ejhg.2015.239. Epub 2015 Nov 11.
6
On moving targets and magic bullets: Can the UK lead the way with responsible data linkage for health research?关于移动目标与神奇子弹:英国能否在健康研究的负责任数据关联方面引领潮流?
Int J Med Inform. 2015 Nov;84(11):933-40. doi: 10.1016/j.ijmedinf.2015.08.011. Epub 2015 Aug 24.
7
The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.大数据伦理:生物医学背景下的当前及可预见问题
Sci Eng Ethics. 2016 Apr;22(2):303-41. doi: 10.1007/s11948-015-9652-2. Epub 2015 May 23.
8
Big data analytics in healthcare: promise and potential.医疗保健中的大数据分析:前景与潜力。
Health Inf Sci Syst. 2014 Feb 7;2:3. doi: 10.1186/2047-2501-2-3. eCollection 2014.
9
The social licence for research: why care.data ran into trouble.研究的社会许可:为何care.data陷入困境。
J Med Ethics. 2015 May;41(5):404-9. doi: 10.1136/medethics-2014-102374. Epub 2015 Jan 23.
10
Redefining genomic privacy: trust and empowerment.重新定义基因组隐私:信任与赋权。
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