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[女英雄,但非女超人。一项针对乳腺癌女性的同伴培训活动评估]

[Heroine, but no Superwoman. Evaluation of a peer-training activity for women with breast cancer].

作者信息

Danet Danet Alina, López Doblas Manuela, March Cerdà Joan Carles, Prieto Rodríguez María Ángeles

机构信息

CIBER de Epidemiología y Salud Pública (CIBERESP), España; Escuela Andaluza de Salud Pública, Granada, España; Instituto de Investigación Biosanitaria de Granada, Granada, España.

Escuela Andaluza de Salud Pública, Granada, España; Instituto de Investigación Biosanitaria de Granada, Granada, España.

出版信息

Gac Sanit. 2020 Jan-Feb;34(1):26-36. doi: 10.1016/j.gaceta.2018.08.007. Epub 2018 Nov 24.

DOI:10.1016/j.gaceta.2018.08.007
PMID:30482408
Abstract

OBJECTIVE

To evaluate a peer-training intervention for women with breast cancer, from a gender perspective: to discover the results of the intervention and examine in-depth the personal experiences of patients and health professionals participating in the training activity.

METHOD

Mixed method multicentre design completed in 2017 in Andalusia (Spain), with a pre and post evaluation questionnaire with 102 patients, measuring life style, limitations, use of health services, communication with professionals and self-management; and content analysis of semi-structured interviews and focus groups with 21 patient-trainers and 5 health professionals, looking at experiences, needs and suggestions for improvement.

RESULTS

The patients described a good general health status, with improvements of: diet quality (7 in pre-test to 7.7 in post-test), limitations for daily life (from 1.93 to 1.64 points), self-efficacy (from 6.46 to 7.42 points). Age, civil status and level of education generated statistically significant differences, with more improvement in more vulnerable social profiles. Participants revealed the benefits of the peer-training at a personal, relational, psycho-emotional and socio-cultural level and expressed how the training changed their experiences around identity-construction and gender roles. The improvement dimensions related to organization, evaluation and continuity.

CONCLUSIONS

The peer-training intervention is a positive experience for women's physical, relational and emotional health and, from a gender perspective, it represents an opportunity, at both individual and group level, to negotiate and deconstruct gender roles when living with breast cancer.

摘要

目的

从性别视角评估针对乳腺癌女性的同伴培训干预措施:了解干预结果,并深入探究参与培训活动的患者及医护人员的个人经历。

方法

2017年在西班牙安达卢西亚完成的混合方法多中心设计,对102名患者进行前后评估问卷调查,测量生活方式、限制因素、医疗服务使用情况、与专业人员的沟通及自我管理;对21名患者培训师和5名医护人员进行半结构化访谈及焦点小组的内容分析,了解经历、需求及改进建议。

结果

患者描述总体健康状况良好,有以下改善:饮食质量(测试前7分,测试后7.7分)、日常生活限制(从1.93分降至1.64分)、自我效能感(从6.46分提高到7.42分)。年龄、婚姻状况和教育水平产生了统计学上的显著差异,社会状况较脆弱的人群改善更多。参与者揭示了同伴培训在个人、人际关系、心理情感和社会文化层面的益处,并表达了培训如何改变了他们在身份建构和性别角色方面的经历。改善维度涉及组织、评估和连续性。

结论

同伴培训干预对女性的身体、人际关系和情感健康是一次积极体验,从性别视角来看,它在个体和群体层面都代表了一个机会,即在患乳腺癌生活时协商和解构性别角色。

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