Witt Stefanie, Escherich Gabriele, Rutkowski Stefan, Kappelhoff Gerhard, Frygner-Holm Sara, Russ Sandra, Bullinger Monika, Quitmann Julia
University Medical Center Hamburg-Eppendorf, Center for Psychosocial Medicine, Department of Medical Psychology, Hamburg, Germany.
University Medical Center Hamburg-Eppendorf, Center for Obstetrics and Pediatrics, Department of Pediatric Hematology and Oncology, Hamburg, Germany.
J Pediatr Nurs. 2019 Jan-Feb;44:e98-e106. doi: 10.1016/j.pedn.2018.11.010. Epub 2018 Nov 28.
The aims of the study are 1) to gain knowledge of parents' and professionals' perceptions about cancer stricken children's resources, burdens, and ability to pretend play, and 2) to prepare the initiation of a pretend play intervention based on children's needs and included parents' and professionals' feedback.
Qualitative design using semi-structured interviews with 13 parents of children diagnosed with leukemia and 15 professionals in the field of pediatric oncology. Themes were derived with content analysis via deductive and inductive coding.
Analysis resulted in five topics. (1) Ability to play in the context of leukemia (2) ways of coping with leukemia (3) difficulty in transition to normality (4) parental quality of life and parents' needs (5) perceptions of the potential of pretend play.
Study results indicate the potential of pretend play interventions for young cancer patients and the need for additional professional support of parents.
Pretend play is a tool children carry with them regardless of their circumstances. If we can enhance their ability to play, doing so should give them an advantage in creative problem solving and creative expression as they deal with a life threatening disease.
本研究的目的是：1）了解家长和专业人士对患癌儿童的资源、负担及假装游戏能力的看法；2）根据儿童需求以及家长和专业人士的反馈，准备开展一项假装游戏干预措施。
采用定性设计，对13名白血病患儿的家长和15名儿科肿瘤领域的专业人士进行半结构式访谈。通过演绎和归纳编码进行内容分析得出主题。
分析得出五个主题。（1）白血病背景下的玩耍能力（2）应对白血病的方式（3）向正常状态过渡的困难（4）家长的生活质量和需求（5）对假装游戏潜力的看法。
研究结果表明假装游戏干预对年轻癌症患者具有潜力，且家长需要更多专业支持。
无论情况如何，假装游戏都是孩子们具备的一种能力。如果我们能够提高他们的玩耍能力，那么在他们应对危及生命的疾病时，这应该会在创造性解决问题和创造性表达方面给他们带来优势。
