Choi Seul Ki, Rose India D, Friedman Daniela B
University of South Carolina, Columbia, USA.
Health Research Informatics and Technology Division, Atlanta, GA, USA.
Gerontol Geriatr Med. 2018 Nov 25;4:2333721418812246. doi: 10.1177/2333721418812246. eCollection 2018 Jan-Dec.
Literacy plays an important role in Alzheimer's disease and related dementias (ADRD); however, less is known about how literacy is being used and defined in ADRD studies. This study reviewed terminology being used to describe types and definitions of literacy and instruments used to assess literacy in ADRD research. Among the 219 studies retrieved from 3 databases, 50 met our inclusion criteria. Literacy terms used in ADRD studies varied: literacy ( = 28), health literacy ( = 9), and dementia literacy ( = 7) were the most often used terms, followed by financial literacy ( = 4), dementia knowledge ( = 3), AD knowledge ( = 2), mental health literacy ( = 2), AD literacy, digital literacy, health literacy about incontinence, and financial knowledge ( = 1 each). Thirty studies did not define literacy terms used. Among the 20 studies defining literacy, definitions were inconsistent across studies even when they used the same term. Surveys ( = 30), open-ended questions, vignettes, or focus groups ( = 10), self-perceived ( = 3) or interviewer assessed ( = 1) literacy levels were used to assess literacy. Ten studies did not specify literacy measurement. Various literacies have been examined in ADRD research with unclear definitions and some inadequate measures. Well-defined terms with valid measures are needed to better understand the role of literacies in ADRD research.
读写能力在阿尔茨海默病及相关痴呆症（ADRD）中起着重要作用；然而，对于读写能力在ADRD研究中的使用方式和定义，人们了解得较少。本研究回顾了用于描述读写能力类型和定义的术语，以及用于评估ADRD研究中读写能力的工具。在从3个数据库检索到的219项研究中，有50项符合我们的纳入标准。ADRD研究中使用的读写能力术语各不相同：读写能力（=28）、健康素养（=9）和痴呆症素养（=7）是最常用的术语，其次是金融素养（=4）、痴呆症知识（=3）、阿尔茨海默病知识（=2）、心理健康素养（=2）、阿尔茨海默病素养、数字素养、关于失禁的健康素养和金融知识（各=1）。30项研究未对所使用的读写能力术语进行定义。在20项定义了读写能力的研究中，即使使用相同的术语，不同研究之间的定义也不一致。使用调查（=30）、开放式问题、 vignettes或焦点小组（=10）、自我感知（=3）或访谈者评估（=1）的读写能力水平来评估读写能力。10项研究未具体说明读写能力的测量方法。ADRD研究中对各种读写能力进行了研究，但定义不明确，一些测量方法也不完善。需要有明确的术语和有效的测量方法，以便更好地理解读写能力在ADRD研究中的作用。
