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“难以触及,但并非遥不可及”:招募患有前列腺癌的非洲裔和加勒比裔黑人男性及其伴侣参与定性研究的障碍与促进因素

"Hard to reach, but not out of reach": Barriers and facilitators to recruiting Black African and Black Caribbean men with prostate cancer and their partners into qualitative research.

作者信息

Bamidele Olufikayo O, E McGarvey Helen, Lagan Briege M, Chinegwundoh Frank, Ali Nasreen, McCaughan Eilis

机构信息

Institute of Nursing and Health Research, Ulster University, Jordanstown, UK.

School of Nursing, Ulster University, Londonderry, UK.

出版信息

Eur J Cancer Care (Engl). 2019 Mar;28(2):e12977. doi: 10.1111/ecc.12977. Epub 2018 Dec 12.

DOI:10.1111/ecc.12977
PMID:30548713
Abstract

Access and recruitment barriers may have contributed to the underrepresentation of Black African/Caribbean men and their partners in current psychosocial research related to prostate cancer survivors. Whilst some studies have explored recruitment barriers and facilitators from participants' perspectives, little is known from researchers' point of view. This paper aimed to address this gap in the literature. Recruitment strategies included the following: cancer support groups, researchers' networks, media advertisement, religious organisations, National Health Service hospitals and snowball sampling. Thirty-six eligible participants (men = 25, partners = 11) were recruited into the study. Recruitment barriers comprised of gate-keeping and advertisement issues and the stigma associated with prostate cancer disclosure. Facilitators which aided recruitment included collaborating with National Health Service hospitals, snowball sampling, flexible data collection, building rapport with participants to gain their trust and researcher's attributes. Findings highlight that "hard to reach" Black African/Caribbean populations may be more accessible if researchers adopt flexible but strategic and culturally sensitive recruitment approaches. Such approaches should consider perceptions of stigma associated with prostate cancer within these communities and the influence gatekeepers can have in controlling access to potential participants. Increased engagement with healthcare professionals and gatekeepers could facilitate better access to Black African/Caribbean populations so that their voices can be heard and their specific needs addressed within the healthcare agenda.

摘要

获取和招募障碍可能导致非洲裔/加勒比裔黑人男性及其伴侣在当前与前列腺癌幸存者相关的社会心理研究中的代表性不足。虽然一些研究从参与者的角度探讨了招募障碍和促进因素,但从研究人员的角度了解得很少。本文旨在填补文献中的这一空白。招募策略包括:癌症支持小组、研究人员网络、媒体广告、宗教组织、国民保健服务医院和滚雪球抽样。36名符合条件的参与者(男性=25名,伴侣=11名)被招募到该研究中。招募障碍包括把关和广告问题以及与前列腺癌披露相关的耻辱感。有助于招募的促进因素包括与国民保健服务医院合作、滚雪球抽样、灵活的数据收集、与参与者建立融洽关系以获得他们的信任以及研究人员的特质。研究结果表明,如果研究人员采用灵活但具有策略性和文化敏感性的招募方法,“难以接触到”的非洲裔/加勒比裔黑人人群可能更容易被接触到。此类方法应考虑这些社区内与前列腺癌相关的耻辱感认知以及把关人在控制接触潜在参与者方面可能产生的影响。加强与医疗保健专业人员和把关人的互动可以促进更好地接触非洲裔/加勒比裔黑人人群,以便在医疗保健议程中听到他们的声音并满足他们的特殊需求。

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