Department of Social Work, National University of Singapore, Singapore, Singapore.
Department of Geriatric Medicine, Khoo Teck Puat Hospital, Yishun, Singapore.
Death Stud. 2020;44(5):292-302. doi: 10.1080/07481187.2018.1541944. Epub 2018 Dec 20.
The study examined and described the perspectives of people living with advanced cancer and the changes over time in their needs and experiences. This paper reports the accounts of 11 terminally-ill people who gave a total of 25 in-depth interviews. Participants were recruited when they began receiving home hospice care service, and they were followed up over time, as their disease progressed. Framework method was used to organize the data and identify themes. The findings highlighted that end-of-life care needs to be holistic, encompassing physical, psychological, social, and spiritual needs, as well as dynamic along the course of disease progression.
本研究考察和描述了晚期癌症患者的观点以及他们的需求和体验随时间的变化。本文报告了 11 名绝症患者的叙述，他们总共进行了 25 次深入访谈。参与者在开始接受家庭临终关怀服务时被招募，随着疾病的进展，他们会随着时间的推移进行随访。采用框架方法对数据进行组织和识别主题。研究结果强调，临终关怀需要是全面的，包括身体、心理、社会和精神需求，并且随着疾病进展的过程是动态的。
