更好地了解需要居家姑息治疗、临终关怀以及护理服务的农村癌症患者的需求。

Gaining a better understanding of the needs of rural cancer patients requiring in-home palliative and end-of-life care and nursing care and services.

作者信息

Gagnon Marie-Carmen, Hébert Johanne

机构信息

Department of Health Sciences, Université du Québec à Rimouski, Lévis Campus, Quebec, Canada G6V 0A6,

出版信息

Can Oncol Nurs J. 2023 Jan 1;33(1):46-60. doi: 10.5737/2368807633146. eCollection 2023 Winter.

Abstract

ISSUE

Access to in-home palliative and end-of-life care (PELC), qualified professionals, and high-quality nursing care and services in rural areas is limited and unequal, thus leading to an increase in unmet needs across the care trajectory of cancer patients.

OBJECTIVES AND METHODOLOGY

A qualitative descriptive study was carried out to gain a better understanding of the needs of rural cancer patients receiving in-home PELC and to describe the nursing care and services available to them.

RESULTS

Five rural cancer patients requiring PELC reported a variety of needs, especially those arising from limited information resources and multiple time- and energy-consuming back-and-forth trips to urban centres. Seven nurses who provide in-home care and services to rural inhabitants outlined the challenges they face in addressing these needs. These are related primarily to the long distances they are called upon to travel, the limited number of specialized professional resources available, transfers to emergency departments, the dearth of PELC training and the lack of a dedicated PELC team.

CONCLUSION

These findings helped gain a better understanding of the specific needs of rural cancer patients requiring in-home PELC, as well as the challenges that nurses must confront to help their patients remain in their own homes.

摘要

问题

农村地区获得居家姑息治疗和临终关怀(PELC)、合格专业人员以及高质量护理服务的机会有限且不平等,从而导致癌症患者整个护理过程中未满足需求增加。

目标和方法

开展了一项定性描述性研究,以更好地了解接受居家PELC的农村癌症患者的需求,并描述为他们提供的护理服务。

结果

五名需要PELC的农村癌症患者报告了各种需求,特别是因信息资源有限以及多次往返城市中心耗费时间和精力而产生的需求。七名向农村居民提供居家护理服务的护士概述了在满足这些需求方面所面临的挑战。这些挑战主要与他们需要长途跋涉、可用的专业资源有限、转诊至急诊科、缺乏PELC培训以及没有专门的PELC团队有关。

结论

这些发现有助于更好地了解需要居家PELC的农村癌症患者的具体需求,以及护士为帮助患者居家必须面对的挑战。

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