Department of Otolaryngology Head and Neck Surgery, Henry Ford Health System, Detroit, Michigan.
Department of Public Health Sciences, Henry Ford Health System, Detroit, Michigan.
Head Neck. 2019 Apr;41(4):1087-1093. doi: 10.1002/hed.25584. Epub 2019 Jan 8.
This article describes the benefits of patient-driven research in the field of head and neck oncology, reviews lessons learned from establishing partnerships with patients and caregivers, and serves as a model for further patient-driven research endeavors.
Head and neck cancer survivors underwent training including that of effective communication and the basics of research methodology. They then drove the agendas for monthly meetings that included a multidisciplinary team of providers, facilitated by a physician champion (S.S.C.).
The advisors reported concrete areas for improvement of the clinical flow, including the formation of a dental oncology clinic and a post-treatment survivorship clinic. They also refined research topics of interest, such as treatment regret. The advisors have also driven efforts to increase public awareness and have participated in cancer symposiums and local presentations.
Patient-driven research improves the relevance and implementation of head and neck oncology research and clinical processes.
本文介绍了患者驱动型研究在头颈肿瘤学领域的益处，回顾了与患者和护理人员建立伙伴关系所获得的经验教训，并为进一步开展患者驱动型研究提供了范例。
头颈部癌症幸存者接受了培训，包括有效的沟通技巧和研究方法的基础知识。然后，他们主导每月的会议议程，这些会议包括由一名医生（S.S.C.）担任主持人的多学科提供者团队。
顾问们报告了临床流程改进的具体领域，包括成立口腔肿瘤学诊所和治疗后生存者诊所。他们还改进了感兴趣的研究课题，如治疗后悔。顾问们还积极推动提高公众意识，并参与癌症研讨会和当地演讲。
患者驱动型研究提高了头颈部肿瘤学研究和临床流程的相关性和实施效果。
