Kimminau Kim S, Jernigan Cheryl, Krebill Hope, Douglas Sara, Peltzer Jill, Hamilton-Reeves Jill, Chen Ronald C, Jensen Roy
Department of Family and Community Medicine, University of Missouri-Columbia, Columbia, MO, USA.
University of Kansas Cancer Center, University of Kansas School of Medicine, Kansas City, KS, USA.
J Clin Transl Sci. 2023 Aug 2;7(1):e178. doi: 10.1017/cts.2023.602. eCollection 2023.
The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise.
堪萨斯大学癌症中心（KU癌症中心）启动了一项参与计划，以利用癌症患者及其家庭的实际经历。KU癌症中心的教职员工和患者合作伙伴建立了一个基础设施，以实现一个由患者设计、患者主导且基于研究的参与计划，称为“患者与研究者共同发声组织”（PIVOT）。这份特别的通讯提供了一份参与路线图，可在其他癌症中心和学术健康系统中复制、扩展和采用。PIVOT表明，学术领袖、研究者和有实际经历的人之间的合作产生了一个以患者为中心、充满活力的环境，丰富了研究事业。
