Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario, M5G 0A4, Canada.
Rotman School of Management, University of Toronto, 105 St. George Street, Toronto, Ontario, M5S 3E6, Canada.
BMC Med Inform Decis Mak. 2019 Jan 10;19(1):9. doi: 10.1186/s12911-018-0715-6.
We developed Supportive care Prioritization, Assessment and Recommendations for Kids (SPARK), a web-based application designed to facilitate symptom screening by children receiving cancer treatments and access to supportive care clinical practice guidelines primarily by healthcare providers. The objective was to describe the initial development and evaluation of SPARK from the perspective of children.
Development and evaluation occurred in three phases: (1) low fidelity focused on functionality, (2) design focused on "look and feel" and (3) high fidelity confirmed functionality and design. Cognitive interviews were conducted with children receiving cancer treatments 8-18 years of age. Evaluation occurred after every five interviews and changes were guided by a Review Panel. Quantitative evaluation included SPARK ease of use and understandability of SPARK reports.
The number of children included by phase were: low fidelity (n = 30), design (n = 30) and high fidelity (n = 30). Across phases, the median age was 13.2 (range 8.5 to 18.4) years. During low-fidelity and design phases, iterative refinements to SPARK improved website navigation, usability and likability from the perspective of children and established symptom report design. Among the last 10 children enrolled to high-fidelity testing, all (100%) understood how to complete symptom screening, access reports and interpret reports. Among these 10 respondents, all (100%) found SPARK easy to use and 9 (90%) found SPARK reports were easy to understand.
SPARK is a web-based application which is usable and understandable, and it is now appropriate to use for research. Future efforts will focus on clinical implementation of SPARK.
我们开发了支持性护理优先排序、评估和推荐系统（SPARK），这是一个基于网络的应用程序，旨在方便接受癌症治疗的儿童进行症状筛查，并主要通过医疗保健提供者获得支持性护理临床实践指南。目的是从儿童的角度描述 SPARK 的初步开发和评估。
开发和评估分为三个阶段：（1）低保真度关注功能，（2）设计关注“外观和感觉”，（3）高保真度确认功能和设计。对 8-18 岁接受癌症治疗的儿童进行了认知访谈。每次访谈后进行评估，并由评审小组指导进行更改。定量评估包括 SPARK 的易用性和对 SPARK 报告的理解程度。
每个阶段纳入的儿童人数分别为：低保真度（n=30）、设计（n=30）和高保真度（n=30）。各阶段的中位数年龄为 13.2 岁（范围为 8.5 至 18.4 岁）。在低保真度和设计阶段，对 SPARK 的迭代改进改善了儿童视角下的网站导航、可用性和喜爱程度，并确定了症状报告设计。在高保真度测试的最后 10 名儿童中，所有人（100%）都理解如何完成症状筛查、访问报告和解释报告。在这 10 名受访者中，所有人（100%）都认为 SPARK 易于使用，9 人（90%）认为 SPARK 报告易于理解。
SPARK 是一个基于网络的应用程序，具有易用性和可理解性，现在可以用于研究。未来的工作重点将放在 SPARK 的临床实施上。
