O'Sullivan C, Dupuis L L, Gibson P, Johnston D L, Baggott C, Portwine C, Spiegler B, Kuczynski S, Tomlinson D, de Mol Van Otterloo S, Tomlinson G A, Sung L
Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario M5G 0A4, Canada.
1] Division of Haematology/Oncology, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada [2] Department of Pharmacy, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada [3] Leslie Dan Faculty of Pharmacy, University of Toronto, 144 College Street, Toronto, Ontario M5S 3M2, Canada.
Br J Cancer. 2014 Sep 23;111(7):1262-8. doi: 10.1038/bjc.2014.445. Epub 2014 Aug 7.
Objective was to evaluate and refine a new instrument for paediatric cancer symptom screening named the Symptom Screening in Pediatrics Tool (SSPedi).
Respondents were children 8-18 years of age undergoing active cancer treatment and parents of eligible children. Respondents completed SSPedi once and then responded to semi-structured questions. They rated how easy or difficult SSPedi was to complete. For items containing two concepts, we asked respondents whether concepts should remain together or be separated into two questions. We also asked about each item's importance and whether items were missing. Cognitive probing was conducted in children to evaluate their understanding of items and the response scale. After each group of 10 children and 10 parents, responses were reviewed to determine whether modifications were required. Recruitment ceased with the first group of 10 children in which modifications were not required.
Thirty children and 20 parents were required to achieve a final version of SSPedi. Fifteen items remain in the final version; the score ranges from 0 to 60.
Using opinions of children with cancer and parents of paediatric cancer patients, we successfully developed a symptom screening tool that is easy to complete, is understandable and demonstrates content validity.
目的是评估并完善一种名为儿科症状筛查工具（SSPedi）的新型儿科癌症症状筛查工具。
受访者为正在接受积极癌症治疗的8至18岁儿童以及符合条件儿童的父母。受访者完成一次SSPedi，然后回答半结构化问题。他们对完成SSPedi的难易程度进行评分。对于包含两个概念的项目，我们询问受访者这些概念应保持在一起还是应分成两个问题。我们还询问了每个项目的重要性以及项目是否缺失。对儿童进行认知探究以评估他们对项目和反应量表的理解。在每组10名儿童和10名父母之后，对回答进行审查以确定是否需要修改。在第一组10名儿童中无需修改时停止招募。
需要30名儿童和20名父母才能获得SSPedi的最终版本。最终版本保留了15个项目；分数范围为0至60。
利用癌症患儿及其父母的意见，我们成功开发了一种易于完成、易于理解且具有内容效度的症状筛查工具。
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