Division of Occupational Therapy, Department of Social and Welfare Studies, Linköping University, Norrköping, Sweden.
Department of Activity and Health, Department of Rehabilitation Medicine and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
Disabil Rehabil. 2020 Feb;42(3):385-393. doi: 10.1080/09638288.2018.1499825. Epub 2019 Jan 11.
To describe the meaning of significant others in relation to participation in everyday life of persons with early diagnosed rheumatoid arthritis (RA). Fifty-nine persons participated in this interview study. Inclusion criteria were three years' experience of diagnosis and being of working age. Semi-structured interviews were conducted using critical incident technique (CIT), and the material was analysed using content analysis. Four categories were revealed: (1) , referring to the person and significant others modifying activities. (2) , where the participants distinguished between needing help and feeling involved in activities. (3) , referring to both the problematic and manageable impact RA could have on body contact. (4) , where participants described feelings of failing others, and anxiety about future activities. For persons with early diagnosed RA, significant others can be both hindering and facilitating for participation in everyday life. As a clinical implication, it is valuable to identify how significant others can be involved in the rehabilitation process, to enhance participation in everyday life early in the disease process.Implications for rehabilitationSignificant others of persons with rheumatoid arthritis can facilitate as well as hinder participation in everyday life, even early in the disease process.It is important to include the significant others in the rehabilitation process of persons with early diagnosed rheumatoid arthritis.It is of great importance to identify when and how significant others can be facilitators of participation in everyday life for persons with early rheumatoid arthritis.To make it easier for significant others to facilitate participation, there is a need for the healthcare system to explore ways to support significant others with easily accessible information about early rheumatoid arthritis.
描述重要他人在参与早期诊断为类风湿关节炎（RA）患者日常生活中的意义。59 人参与了这项访谈研究。纳入标准为诊断后三年的经验和处于工作年龄。使用关键事件技术（CIT）进行半结构化访谈，对材料进行内容分析。揭示了四个类别：（1），指人与重要他人修改活动。（2），参与者区分需要帮助和参与活动的感觉。（3），指 RA 对身体接触可能产生的问题和可管理影响。（4），参与者描述了对他人失望的感觉，以及对未来活动的焦虑。对于早期诊断为 RA 的患者，重要他人可能会对日常生活的参与产生阻碍或促进作用。作为临床意义，重要的是确定如何让重要他人参与康复过程，以在疾病早期增强日常生活的参与度。康复的意义RA 患者的重要他人可以促进也可以阻碍日常生活的参与，即使在疾病早期也是如此。将重要他人纳入早期诊断为类风湿关节炎患者的康复过程中非常重要。重要的是要确定何时以及如何让重要他人成为早期类风湿关节炎患者日常生活参与的促进者。为了让重要他人更容易促进参与，医疗保健系统需要探索支持重要他人的方法，以便他们能够获得有关早期类风湿关节炎的易于访问的信息。
