Guermazi M, Poiraudeau S, Lefevre-Colau M M, Revel M
Service de médecine physique et réadaptation fonctionnelle, CHU Habib-Bourguiba, 3000, Sfax, Tunisie.
Ann Readapt Med Phys. 2003 Jun;46(5):241-8. doi: 10.1016/s0168-6054(03)00085-0.
To construct a handicap assessment questionnaire for rheumatoid arthritis and to determine if the concept of "participation" can replace the one of "handicap".
Selection of daily life domains and items was based on the International Classification of Impairment Disability and Handicap "ICIDH" and on some others handicap epidemiological studies. The questionnaire was tested among rheumatoid arthritis patients. The relation between handicap and participation was investigated. Statistics analysis was performed with Systat.9 program. Spearman's correlation coefficient between 2 quantitative variables was examined.
Six among the 7 "ICIDH" domains were included in the questionnaire. Each of them was explored with many items. Forty-six items were included; each item was explored in 4 chapters:participation assessment with VAS (Visual Analogical Scale) before rheumatoid arthritis and during the study; difficulties: need of help, environment accessibility, patient's satisfaction, feeling of devalorization; patient's propositions;handicap assessment with VAS; other questions were added in some particular items. Thirty patients were included in the study (23 women), the average age was 51 years. Five patients didn't understand the meaning of "Handicap".This study allows us to eliminate 2 items, to add 2 others and to ameliorate 1 of them. Correlation between handicap and participation was moderate to bad.
This questionnaire allows to explore rheumatoid arthritis handicap. Each domain of the daily life can be assessed separately. The main difficulties are the length and the impossibility to be self-administered. Handicap and participation probably assess different concepts or are differently understood by patients.
构建类风湿关节炎残疾评估问卷，并确定“参与”概念是否可以取代“残疾”概念。
基于《国际功能、残疾和健康分类》（ICIDH）以及其他一些残疾流行病学研究来选择日常生活领域和项目。该问卷在类风湿关节炎患者中进行测试。研究残疾与参与之间的关系。使用Systat.9程序进行统计分析。检验两个定量变量之间的Spearman相关系数。
问卷纳入了7个ICIDH领域中的6个。每个领域都通过多个项目进行探究。共纳入46个项目；每个项目在4个章节中进行探究：类风湿关节炎之前和研究期间使用视觉模拟量表（VAS）进行参与评估；困难：需要帮助、环境可达性、患者满意度、失能感；患者建议；使用VAS进行残疾评估；在一些特定项目中添加了其他问题。30名患者纳入研究（23名女性），平均年龄51岁。5名患者不理解“残疾”的含义。本研究使我们能够剔除2个项目，添加2个其他项目并改进其中1个项目。残疾与参与之间的相关性为中度至低度。
该问卷可用于探究类风湿关节炎残疾情况。日常生活的每个领域都可单独评估。主要困难在于问卷篇幅长且无法自行填写。残疾和参与可能评估的是不同概念，或者患者对它们的理解不同。
