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父母对新生儿重症监护病房的满意度:一项定量横断面研究。

Parental satisfaction with neonatal intensive care units: a quantitative cross-sectional study.

作者信息

Hagen Inger Hilde, Iversen Valentina Cabral, Nesset Erik, Orner Roderick, Svindseth Marit Følsvik

机构信息

NTNU Norwegian University of Science and Technology, Postbox 1517, 6025, Aalesund, Norway.

St Olav's University Hospital HF, Tiller District Psychiatric Center, Trondheim, Norway.

出版信息

BMC Health Serv Res. 2019 Jan 15;19(1):37. doi: 10.1186/s12913-018-3854-7.

DOI:10.1186/s12913-018-3854-7
PMID:30646901
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6332571/
Abstract

BACKGROUND

Patients and users experiences are useful for monitoring the quality of the hospital provisions and to improve health care delivery. Research results on associations between parental satisfaction and their socio-demographic status are inconclusive. We have also found a scarcity of research on the associations between parental satisfaction and standards of neonatal intensive care (NICU) services. We used the Neonatal Satisfaction Survey (NSS-8) to collect data to explore associations between parental satisfaction and socio-demographic variables and, associations between parents' satisfaction and NICU care-services.

METHODS

A total of 568 parents from six different NICUs geographically dispersed in Norway completed the (NSS-8). All responses were rated and analysed using nonparametric analyses and logistic regression.

RESULTS

Support from families and friends is the most important sociodemographic area which links to reported levels of parental satisfaction. The most important areas for parents' satisfaction with NICU care services include the decision making processes regarding the infant, respect and empathy from staff, and the continuity of treatment and care. Parents were least satisfied with how NICUs facilitate ongoing care for siblings, parents and infants during later stages of their hospital stay. Parents reported being in need of more guidance and training in meeting their child's needs.

CONCLUSION

To increase and sustain parents' satisfaction with NICU care considerations should be given to separate elements of the total provision made for affected families. This study suggests that health personnel could address the needs of all family members as these evolve through phases of their stays in hospitals; be more attentive to parents with very preterm infants and parents with long NICU admissions; provide support to siblings; and give more attention to parents' needs for continuity of care, follow-up, and information.

摘要

背景

患者及使用者的体验有助于监测医院服务质量并改善医疗服务的提供。关于父母满意度与其社会人口统计学状况之间关联的研究结果尚无定论。我们还发现,关于父母满意度与新生儿重症监护(NICU)服务标准之间关联的研究较少。我们使用新生儿满意度调查(NSS - 8)收集数据,以探讨父母满意度与社会人口统计学变量之间的关联,以及父母满意度与NICU护理服务之间的关联。

方法

来自挪威不同地理位置的六个不同NICU的568名家长完成了(NSS - 8)调查。所有回答均使用非参数分析和逻辑回归进行评分和分析。

结果

家人和朋友的支持是与报告的父母满意度水平相关的最重要的社会人口统计学领域。父母对NICU护理服务最满意的领域包括关于婴儿的决策过程、工作人员的尊重和同理心,以及治疗和护理的连续性。父母对NICU在其住院后期为兄弟姐妹、父母和婴儿提供持续护理的方式最不满意。父母报告说在满足孩子需求方面需要更多的指导和培训。

结论

为了提高并维持父母对NICU护理的满意度,应考虑为受影响家庭提供的整体服务的各个单独要素。这项研究表明,卫生人员可以满足所有家庭成员在住院各阶段不断变化的需求;更加关注极早产儿的父母和NICU住院时间长的父母;为兄弟姐妹提供支持;并更多地关注父母对护理连续性、随访和信息的需求。

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本文引用的文献

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BMC Health Serv Res. 2018 Mar 27;18(1):222. doi: 10.1186/s12913-018-3031-z.
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A systematic review of instruments for assessing parent satisfaction with family-centred care in neonatal intensive care units.系统评价评估新生儿重症监护病房以家庭为中心的护理中父母满意度的工具。
Acta Paediatr. 2018 Mar;107(3):391-402. doi: 10.1111/apa.14186. Epub 2018 Jan 4.
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Supporting parents in taking care of their infants admitted to a neonatal intensive care unit: a prospective cohort pilot study.支持父母照顾入住新生儿重症监护病房的婴儿:一项前瞻性队列试点研究。
Ital J Pediatr. 2017 Apr 17;43(1):36. doi: 10.1186/s13052-017-0352-1.
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Supporting Siblings of Neonatal Intensive Care Unit Patients: A NICU Social Story™ as an Innovative Approach.支持新生儿重症监护病房患者的兄弟姐妹:一种创新方法——《新生儿重症监护病房社会故事™》
J Pediatr Nurs. 2017 Mar-Apr;33:91-93. doi: 10.1016/j.pedn.2016.12.002. Epub 2016 Dec 12.
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Parental Decision-Making Preferences in Neonatal Intensive Care.新生儿重症监护中的家长决策偏好
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J Perinatol. 2016 Nov;36(11):1001-1007. doi: 10.1038/jp.2016.142. Epub 2016 Sep 1.
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