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哥伦比亚不同社会主体对用于研究目的的生物样本库的看法。

The perception of different social agents in Colombia regarding biobanks for research purposes.

作者信息

Serrano Norma Cecilia, Guio-Mahecha Elizabeth, Becerra-Bayona Silvia, Luna-González María Lucrecia, Quintero-Lesmes Doris Cristina

机构信息

Centro de Investigaciones, Fundación Cardiovascular de Colombia, Floridablanca, Colombia Centro de Investigaciones, Hospital Internacional de Colombia, Piedecuesta, Colombia Centro de Investigaciones, Fundación Universitaria - Fundación Cardiovascular de Colombia, Piedecuesta, Colombia.

出版信息

Biomedica. 2018 Dec 1;38(4):569-576. doi: 10.7705/biomedica.v38i4.4327.

Abstract

Introduction: Biobanks for research purposes are public assets that require active participation from all interested parties; therefore, it is important to discern and investigate the perception that the general public in Colombia has with regards to their participation in a biobank. Objective: To question different healthy Colombian social agents about the perception they have on donating human biological material to be stored in a biobank for future research purposes. Materials and methods: We conducted an exploratory quantitative and qualitative research by means of an anonymous survey on healthy members of the Colombian community in order to evaluate their knowledge and stances related to biobanks. Results: Three hundred sixty-eight (368) individuals completed the survey, including health-care researchers, lawyers and members of research ethics committees. Ninety-six percent (96%) of the subjects stated their willingness to donate biological material to biobanks, although 60% expressed distress about their samples being used for certain research activities, mainly human cloning. Even though about half of the participants reported knowing what a biobank is, less than 3% of the individuals had a clear concept of them. Conclusion: Participants showed their willingness to donate and store their biological material for research purposes. Similarly, they expressed their opinion about issues related to the management of biobanks. It is necessary to take into account the opinions of the general public in the development of policies that regulate biobanks for research purposes in Colombia.

摘要

引言

用于研究目的的生物样本库是公共资产,需要所有感兴趣的各方积极参与;因此,辨别和调查哥伦比亚公众对参与生物样本库的看法很重要。目的:向不同的哥伦比亚健康社会群体询问他们对捐赠人类生物材料以存储在生物样本库中用于未来研究目的的看法。材料和方法:我们通过对哥伦比亚社区健康成员进行匿名调查开展了一项探索性定量和定性研究,以评估他们与生物样本库相关的知识和立场。结果:368人完成了调查,包括医疗保健研究人员、律师和研究伦理委员会成员。96%的受试者表示愿意向生物样本库捐赠生物材料,尽管60%的人对其样本用于某些研究活动,主要是人类克隆表示担忧。尽管约一半的参与者报告知道什么是生物样本库,但不到3%的人对其有清晰的概念。结论:参与者表示愿意为研究目的捐赠和存储他们的生物材料。同样,他们对与生物样本库管理相关的问题表达了自己的意见。在制定规范哥伦比亚用于研究目的的生物样本库的政策时,有必要考虑公众的意见。

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