Disability and Community Inclusion, College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.
Department of Psychiatry, Flinders University, Adelaide, Australia.
Disabil Rehabil. 2020 May;42(9):1305-1315. doi: 10.1080/09638288.2018.1522551. Epub 2019 Jan 17.
(1) to provide insight into the family's experience and support needs following acquired brain injury (ABI) specific to behavioural changes; (2) to provide an overview of empirically-based behaviour support approaches for individuals with ABI; and (3), to examine family involvement in implementing behavioural interventions. Review of the literature. Family members experience significant distress resulting from neurobehavioural changes in relatives with ABI, and report unmet informational and practical support needs regarding this issue. The importance of utilising family expertise within the rehabilitation process is widely acknowledged, with the increasing involvement of family members being promoted. There is growing evidence supporting the use of positive behaviour support approaches for individuals with ABI in community settings, and evidence supporting the involvement of family within behavioural interventions. This review suggests the need to develop alternative support models that shift the focus towards building competence in everyday support people rather than dependency on the service system. A bottom-up approach is recommended, with the aim of addressing unmet support needs and increasing the competence of family members in supporting behaviour change in individuals with ABI. Recommendations are provided in informing an optimal community-based neurobehavioural support model. Implications for RehabilitationPositive behaviour support is recommended in supporting behavioural changes following brain injury, with family expertise utilised in this process.Evidence suggests that family members can be effectively trained in developing and implementing behaviour support strategies.Family involvement in behavioural interventions may address unmet support needs and increasing the competence of family members in supporting behavioural changes following brain injury.
(1)深入了解特定于行为改变的后天性脑损伤(ABI)后家庭的体验和支持需求;(2)提供基于经验的针对 ABI 个体的行为支持方法概述;以及(3)检查家庭在实施行为干预中的参与度。文献回顾。家庭成员因亲属的神经行为变化而经历显著的痛苦,并报告在这一问题上存在信息和实际支持需求未得到满足。在康复过程中利用家庭专业知识的重要性得到广泛认可,越来越多地让家庭成员参与进来。越来越多的证据支持在社区环境中对 ABI 个体使用积极的行为支持方法,并且支持家庭参与行为干预。这一综述表明,有必要开发替代支持模式,将重点转移到培养日常支持人员的能力上,而不是依赖服务系统。建议采用自下而上的方法,以满足未得到满足的支持需求,并提高家庭成员在支持 ABI 个体行为改变方面的能力。在告知最佳基于社区的神经行为支持模型方面提供了建议。康复的意义积极的行为支持建议用于支持脑损伤后的行为变化,在此过程中利用家庭专业知识。有证据表明,家庭成员可以有效地接受培训,以制定和实施行为支持策略。家庭在行为干预中的参与可能会满足未得到满足的支持需求,并提高家庭成员在支持脑损伤后行为变化方面的能力。