Department of Nursing, Faculty of Nursing, Catholic University of Valencia, Valencia, Spain.
Department of Personality, Assessment and Psychological Treatments, Faculty of Psychology, University of Valencia, Valencia, Spain.
J Adv Nurs. 2019 Jul;75(7):1484-1492. doi: 10.1111/jan.13957. Epub 2019 Feb 27.
Lupus erythematosus (LE) is an autoimmune disease that can have negative repercussions on the quality of life (QL) of those who suffer from it. The QL can be influenced by socio-demographic factors are related to the disease itself.
To analyse the associative power of socio-demographic (age and sex) and medical variables (type of lupus, diagnostic time and symptomatically associated with lupus) on the QL in patients with lupus by comparing linear relations models and models based on comparative qualitative fuzzy analysis.
This is a retrospective cross-sectional design.
The sample consisted of 161 patients (88.4% female) diagnosed with LE between the ages of 18-66 years.
Data were collected between 2015 - 2017 using the Lupus Erythematosus Quality of Life Questionnaire. Two different statistical methodologies were used: traditional regression models and qualitative comparative analysis models of fuzzy sets.
The results of the regression model suggest that none of the variables considered could explain the QL of these patients. On the other hand, the results of the fuzzy models suggest that being female, young and a shorter time to diagnosis explain higher levels of QL in these types of patients.
Since nurses are the people who interact most with patients, detecting risk groups of patients with lupus respect to their QL. This can help develop intervention programs from a nursing perspective.
红斑狼疮(LE)是一种自身免疫性疾病,会对患者的生活质量(QL)产生负面影响。QL 可能会受到与疾病本身相关的社会人口统计学因素的影响。
通过比较线性关系模型和基于比较定性模糊分析的模型,分析社会人口统计学(年龄和性别)和医学变量(狼疮类型、诊断时间和与狼疮相关的症状)对狼疮患者 QL 的关联能力。
这是一项回顾性的横断面设计。
样本由 161 名年龄在 18-66 岁之间的确诊为 LE 的患者(88.4%为女性)组成。
在 2015-2017 年期间,使用红斑狼疮生活质量问卷收集数据。使用了两种不同的统计方法:传统回归模型和模糊集的定性比较分析模型。
回归模型的结果表明,考虑的变量都无法解释这些患者的 QL。另一方面,模糊模型的结果表明,女性、年轻和较短的诊断时间解释了这些类型患者更高的 QL。
由于护士是与患者互动最多的人,因此可以检测到狼疮患者的 QL 风险群体。这有助于从护理角度制定干预计划。