Department of Oncology and Ingram School of Nursing, McGill University, Canada; Segal Cancer Centre, Jewish General Hospital, 3755 Côte Sainte-Catherine Rd, Pav. E-748, Montreal, QC, H3T 1E2, Canada.
Patient Educ Couns. 2019 Jun;102(6):1187-1193. doi: 10.1016/j.pec.2019.01.009. Epub 2019 Jan 18.
True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Cancer information-seeking preferences (CISP) by patients are increasingly found to modulate illness and care processes. However, research has yet to document the CISP types and prevalence as well as their associations with satisfaction with care.
Individuals (N = 2142) treated for cancer in the last 6 months completed the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) and a CISP measure.
Whereas 60.3% (n = 1292) reported wanting to actively seek information about their cancer, a surprisingly high percentage (i.e., 39.7%; n = 850) did not. Men reported avoiding cancer information to a greater extent than women, χ² (4, N = 2108) = 12.00, p = 0.02. CISP were also differentially associated with 6 key domains of satisfaction, with intense seekers consistently being less satisfied.
These findings underscore how CISP can significantly affect patients' cancer experience as well as their care satisfaction.
真正以患者为中心的护理（PCC）涉及在疾病发生过程中预测、响应和整合患者的需求和偏好。PCC 的成功部分取决于高质量的医患沟通和定制的信息交流。这些过程可以对患者体验、自我管理和健康结果（包括生存）产生深远影响。越来越多的研究发现，患者的癌症信息寻求偏好（CISP）会调节疾病和护理过程。然而，研究尚未记录 CISP 类型和流行程度及其与护理满意度的关系。
在过去 6 个月内接受癌症治疗的个体（N=2142）完成了门诊肿瘤患者满意度调查（AOPSS）和 CISP 测量。
虽然 60.3%（n=1292）报告希望积极寻求有关其癌症的信息，但令人惊讶的是，有相当高比例（即 39.7%；n=850）的人不想寻求信息。与女性相比，男性更倾向于避免获取癌症信息，χ²（4，N=2108）=12.00，p=0.02。CISP 还与 6 个关键满意度领域存在差异相关，强烈寻求者的满意度始终较低。
这些发现强调了 CISP 如何显著影响患者的癌症体验以及他们的护理满意度。
