Bruneel Laura, Alighieri Cassandra, De Smet Sofie, Bettens Kim, De Bodt Marc, Van Lierde Kristiane
Ghent University, Department of Speech, Language, and Hearing Sciences, Ghent, Belgium.
Ghent University, Department of Speech, Language, and Hearing Sciences, Ghent, Belgium.
Int J Pediatr Otorhinolaryngol. 2019 Apr;119:141-146. doi: 10.1016/j.ijporl.2019.01.026. Epub 2019 Jan 26.
Recently, the Velopharyngeal Insufficiency (VPI) Effects on Life Outcomes (VELO) questionnaire, which evaluates the impact of speech and swallowing difficulties on health-related quality of life (HRQoL) in patients with VPI (Skirko et al., 2012), was translated to Dutch (Bruneel et al., 2017). The purpose of this study was to evaluate the reproducibility, responsiveness and construct validity of this Dutch version of the questionnaire.
To evaluate the reproducibility, 50 parents and 14 children with cleft palate re-completed the questionnaire after two weeks. Thirty-five parents and 8 children with cleft palate completed the VELO questionnaire after one year for the evaluation of the responsiveness. The correlation between age and the VELO questionnaire (construct validity), and the internal consistency (Cronbach's α) were re-determined based on the responses of 73 parents and 24 children.
Based on descriptive statistics, results of the Wilcoxon signed rank-test, and the absolute (SEM) and relative (ICC) consistency, the questionnaire showed good reproducibility. VELO scores did not significantly differ after one year, neither when performing separate analyses for the intervention (speech therapy) and the non-intervention group. Correlations indicated higher HRQoL, as perceived by the parents, with increasing age. The reverse was the case for the youth report. Cronbach's α showed excellent internal consistency for both reports.
The VELO questionnaire showed good reproducibility and internal consistency. Moreover, results reconfirmed the age effect on VELO scores. To understand the implications of the results regarding the questionnaire's responsiveness, future research should focus on the identification of factors influencing the patient's evolution in HRQoL.
最近，评估言语和吞咽困难对腭咽闭合不全（VPI）患者健康相关生活质量（HRQoL）影响的《腭咽闭合不全对生活结局的影响（VELO）问卷》（Skirko等人，2012年）已被翻译成荷兰语（Bruneel等人，2017年）。本研究的目的是评估该荷兰语版本问卷的可重复性、反应性和结构效度。
为评估可重复性，50名腭裂患儿的家长和14名患儿在两周后重新填写了问卷。35名腭裂患儿的家长和8名患儿在一年后完成了VELO问卷，以评估反应性。根据73名家长和24名患儿的回答，重新确定年龄与VELO问卷之间的相关性（结构效度）以及内部一致性（Cronbach's α）。
基于描述性统计、Wilcoxon符号秩检验结果以及绝对（SEM）和相对（ICC）一致性，该问卷显示出良好的可重复性。一年后VELO得分无显著差异，对干预组（言语治疗）和非干预组进行单独分析时亦是如此。相关性表明，家长认为随着年龄增长，HRQoL更高。青少年报告的情况则相反。Cronbach's α显示两份报告的内部一致性都非常好。
VELO问卷显示出良好的可重复性和内部一致性。此外，结果再次证实了年龄对VELO得分的影响。为了解有关问卷反应性结果的含义，未来的研究应侧重于确定影响患者HRQoL演变的因素。
