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The worldwide incidence and prevalence of systemic lupus erythematosus: a systematic review of epidemiological studies.系统性红斑狼疮的全球发病率和患病率:流行病学研究的系统评价
Rheumatology (Oxford). 2017 Nov 1;56(11):1945-1961. doi: 10.1093/rheumatology/kex260.
2
Clinical manifestations of patients with Systemic Lupus Erythematosus (SLE) in Khyber Pakhtunkhwa.开伯尔-普赫图赫瓦省系统性红斑狼疮(SLE)患者的临床表现。
J Pak Med Assoc. 2017 Aug;67(8):1180-1185.
3
One year in review 2017: systemic lupus erythematosus.2017年度回顾:系统性红斑狼疮
Clin Exp Rheumatol. 2017 Jul-Aug;35(4):551-561. Epub 2017 Jul 11.
4
Limitations of current treatments for systemic lupus erythematosus: a patient and physician survey.目前系统性红斑狼疮治疗方法的局限性:一项患者和医生的调查。
Lupus. 2013 Jul;22(8):819-26. doi: 10.1177/0961203313492577.
5
Experiences and perspectives of adults living with systemic lupus erythematosus: thematic synthesis of qualitative studies.成人系统性红斑狼疮患者的体验和观点:定性研究的主题综合分析。
Arthritis Care Res (Hoboken). 2013 Nov;65(11):1752-65. doi: 10.1002/acr.22032.
6
An update on mortality in systemic lupus erythematosus.系统性红斑狼疮死亡率的最新情况。
Clin Exp Rheumatol. 2008 Sep-Oct;26(5 Suppl 51):S72-9.
7
Systemic lupus erythematosus in Saudi Arabia: morbidity and mortality in a multiethnic population.沙特阿拉伯的系统性红斑狼疮:多民族人群中的发病率和死亡率
Lupus. 2007;16(11):908-14. doi: 10.1177/0961203307081112.
8
Systemic lupus erythematosus in Portugal: diagnosis and disease awareness from 1970 to 2001.葡萄牙的系统性红斑狼疮:1970年至2001年的诊断与疾病认知
Eur J Epidemiol. 2003;18(10):995-9. doi: 10.1023/a:1025854611531.

沙特阿拉伯利雅得初级卫生保健患者对系统性红斑狼疮的认知情况。

Awareness of systemic lupus erythematosus among primary health care patients in Riyadh, Saudi Arabia.

作者信息

Bin Haikel Kholoud A, Al Tulaihi Bader

机构信息

Department of Family Medicine and Primary Health Care, King Abdulaziz Medical City, Ministry of the National Guard Health Affairs, Riyadh, Kingdom of Saudi Arabia. E-mail.

出版信息

Saudi Med J. 2019 Feb;40(2):177-182. doi: 10.15537/smj.2019.2.23920.

DOI:10.15537/smj.2019.2.23920
PMID:30723863
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6402467/
Abstract

OBJECTIVES

To measure the levels of systemic lupus erythematosus (SLE) awareness among patients in primary health care (PHC) at King Abdulaziz Medical City (KAMC), Riyadh, Kingdom of Saudi Arabia, and to explore the factors which influence the SLE awareness.

METHODS

The study was a cross-sectional study conducted between February and September 2018 in 4 PHC centers at KAMC. The study participants were male and female adult visitors to the centers age from 18-60 years. The sample size was 400 participants. The participants were enrolled via a random convenience sampling method. Study data was collected using a self-administered questionnaire. Analytic statistics were carried out using the Chi-square test for associations or the differences between 2 categorical variables. A p≤0.05 was considered significant. Results: Most of the participants in our study were unaware of SLE. This indicates poor knowledge about the disease. There were no statistically significant differences in awareness about SLE between males and females (p=0.304), but there were significant differences according to education levels (p=0.023), and between knowing a person who had been diagnosed with SLE and caring for him or her (p=0.020). Conclusion: The study shows that this survey is valuable and beneficial to the community as it helps people to assess their knowledge about SLE and become aware of this disease, as well as awareness of SLE should be promoted among the community.

摘要

目的

测量沙特阿拉伯王国利雅得阿卜杜勒阿齐兹国王医疗城(KAMC)初级卫生保健(PHC)患者对系统性红斑狼疮(SLE)的认知水平,并探讨影响SLE认知的因素。

方法

该研究为横断面研究,于2018年2月至9月在KAMC的4个初级卫生保健中心进行。研究参与者为年龄在18 - 60岁之间的该中心成年男女访客。样本量为400名参与者。参与者通过随机便利抽样方法纳入。研究数据通过自行填写问卷收集。使用卡方检验分析两个分类变量之间的关联或差异。p≤0.05被认为具有统计学意义。结果:我们研究中的大多数参与者对SLE不了解。这表明对该疾病的认知较差。男性和女性对SLE的认知在统计学上无显著差异(p = 0.304),但根据教育水平存在显著差异(p = 0.023),并且在认识被诊断患有SLE的人并照顾过此人与否之间也存在显著差异(p = 0.020)。结论:该研究表明,这项调查对社区有价值且有益,因为它有助于人们评估自己对SLE的知识并了解这种疾病,同时应在社区中提高对SLE的认知。