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中国脊髓损伤患者过渡期护理结局指标:基于国际功能、残疾和健康分类的德尔菲调查。

Outcome indicators in the transitional care of people with spinal cord injury in China: a Delphi survey based on the International Classification of Functioning, Disability and Health.

机构信息

School of Nursing, Sun Yat-sen University, Guangzhou, China.

Department of Spinal Cord Injury Rehabilitation, Guangdong Provincial Work Injury Rehabilitation Hospital, Guangzhou, China.

出版信息

Disabil Rehabil. 2020 Jun;42(11):1539-1547. doi: 10.1080/09638288.2018.1528638. Epub 2019 Feb 6.

DOI:10.1080/09638288.2018.1528638
PMID:30724613
Abstract

To identify the categories of the International Classification of Functioning, Disability and Health most suitable as outcome indicators in the transitional care for people with spinal cord injury in China. A three-round Delphi survey was conducted surveying 37 experts selected through purposive sampling. In the first round, each expert was required to suggest the most useful indicators in the transitional care for spinal cord injury patients. Categories of the International Classification of Functioning, Disability and Health were linked with the concepts extracted from the responses. In the second round, the experts were asked to make a yes/no judgment about the utility of those categories as outcome indicators and to rate their importance from 1 to 10. In the third round, the experts were asked to re-judge and re-rate the importance considering the second-round results. Forty-one categories, seven personal factors, and three concepts not covered in the International Classification of Functioning, Disability and Health were identified. They generated agreement percentages over 80% in the third round. The means of the importance ratings ranged from 5.15 to 9.52. A set of categories and concepts was identified in the Delphi survey based on the International Classification of Functioning, Disability and Health. They provided a reference and a basis for establishing a system of outcome indicators in the transitional care for patients with spinal cord injury in China.Implications for rehabilitationIn China, the people with spinal cord injury who live at home after discharge urgently need professional transitional care which can be extended from medical institutions to families.The categories and concepts identified by the Delphi survey based on the International Classification of Functioning, Disability and Health reflect the focuses in the transitional care of people with spinal cord injury in China.Those categories and concepts provide a reference and a basis for establishing a system of outcome indicators in the transitional care for patients with spinal cord injury in China.

摘要

为明确适合我国脊髓损伤患者过渡期护理结局指标的《国际功能、残疾和健康分类》类目。采用三轮德尔菲法,通过目的抽样选取 37 名专家进行调查。第一轮,每位专家需提出用于评价脊髓损伤患者过渡期护理的最有用指标,将指标所涉及的《国际功能、残疾和健康分类》类目与概念相联系;第二轮,要求专家对各类目是否可作为结局指标进行“是/否”判断,并对其重要性进行 110 分的评分;第三轮,根据第二轮结果重新判断和评分。共确定 41 个类目、7 个人类因素和 3 个《国际功能、残疾和健康分类》未涵盖的概念。第三轮达成一致的百分比均>80%,重要性评分均值为 5.159.52。本德尔菲法研究基于《国际功能、残疾和健康分类》确定了一套类目和概念,为我国脊髓损伤患者过渡期护理结局指标体系的建立提供了参考和依据。康复展望我国,出院后居家的脊髓损伤患者非常需要可从医疗机构延伸至家庭的专业过渡期护理。德尔菲法研究基于《国际功能、残疾和健康分类》确定的类目和概念,反映了我国脊髓损伤患者过渡期护理的关注点。这些类目和概念为建立我国脊髓损伤患者过渡期护理结局指标体系提供了参考和依据。

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