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中国香港特别行政区脊髓损伤的过渡性护理:本地经验的叙述性综述

Transitional Care for Spinal Cord Injuries in Hong Kong SAR, China: A Narrative Review of the Local Experience.

作者信息

Lam Chor-Yin, Su Ivan Yuen-Wang, Law Joyce Yuk-Mui

机构信息

Department of Orthopaedics and Traumatology, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China.

SAHK, Hong Kong SAR, China.

出版信息

Healthcare (Basel). 2024 Nov 28;12(23):2388. doi: 10.3390/healthcare12232388.

DOI:10.3390/healthcare12232388
PMID:39685010
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11641308/
Abstract

Spinal cord injuries (SCI) are devastating conditions which often cause multiple permanent physical impairments and psychosocial complications. Discharge from hospital is often delayed and precious health resources are consumed. In Hong Kong SAR, China, the government welfare system and the public hospital system have worked together to address these problems through partnership with non-governmental organizations. An SCI transitional care facility (the Jockey Club New Page Inn, JCNPI) run by a non-governmental organization (SAHK), was inaugurated in 2008. Review the local experience of the implementation of SCI transitional care in Hong Kong SAR, China. A narrative review of the service model, facilitators and barriers, and future development. Service output and outcomes were evaluated with quantitative and qualitative means. The SCI transitional care in Hong Kong provides person-centred transitional care and support, including a time-limited residential rehabilitation, a post-discharge community day rehabilitation programme, and a residential respite care. The current intervention strategy is based on the WHO's International Classification of Functioning, Disability, and Health (ICF). In the past 16 years, a total of 226 clients were discharged from the residential rehabilitation service. A total of 223 (98.6%) clients have successfully returned to community living. Positive feedback was received from the service users. : The SCI transitional care has transformed care for SCI patients from the previous biomedical-oriented, hospital-based rehabilitation into a journey with an empowering and participatory approach addressing their biopsychosocial needs. The model has proven to be a key player in the continuum of care and sustainable community reintegration of individuals with SCI.

摘要

脊髓损伤(SCI)是极具破坏性的病症,常常会导致多种永久性身体损伤和心理社会并发症。出院时间往往延迟,宝贵的医疗资源被消耗。在中国香港特别行政区,政府福利系统和公立医院系统通过与非政府组织合作,共同努力解决这些问题。一家由非政府组织(香港伤健协会)运营的脊髓损伤过渡护理设施(赛马会新里程复康院,JCNPI)于2008年启用。回顾中国香港特别行政区实施脊髓损伤过渡护理的本地经验。对服务模式、促进因素和障碍以及未来发展进行叙述性综述。通过定量和定性方法评估服务产出和结果。香港的脊髓损伤过渡护理提供以人为本的过渡护理和支持,包括限时住院康复、出院后社区日间康复计划以及住院暂托护理。当前的干预策略基于世界卫生组织的《国际功能、残疾和健康分类》(ICF)。在过去16年中,共有226名客户从住院康复服务中出院。共有223名(98.6%)客户成功回归社区生活。服务使用者给予了积极反馈。脊髓损伤过渡护理已将脊髓损伤患者的护理从以往以生物医学为导向、基于医院的康复转变为一种采用赋权和参与式方法满足其生物心理社会需求的过程。该模式已被证明是脊髓损伤患者连续护理和可持续社区重新融入过程中的关键因素。

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本文引用的文献

1
Functional recovery priorities and community rehabilitation service preferences of spinal cord injury individuals and caregivers of Chinese ethnicity and cultural background.具有中国种族和文化背景的脊髓损伤患者及其照顾者的功能恢复优先事项和社区康复服务偏好
Front Neurol. 2022 Aug 3;13:941256. doi: 10.3389/fneur.2022.941256. eCollection 2022.
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Effects of App-Based Transitional Care on the Self-Efficacy and Quality of Life of Patients With Spinal Cord Injury in China: Randomized Controlled Trial.基于应用程序的过渡期护理对中国脊髓损伤患者自我效能和生活质量的影响:随机对照试验。
JMIR Mhealth Uhealth. 2021 Apr 1;9(4):e22960. doi: 10.2196/22960.
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Outcome indicators in the transitional care of people with spinal cord injury in China: a Delphi survey based on the International Classification of Functioning, Disability and Health.
中国脊髓损伤患者过渡期护理结局指标:基于国际功能、残疾和健康分类的德尔菲调查。
Disabil Rehabil. 2020 Jun;42(11):1539-1547. doi: 10.1080/09638288.2018.1528638. Epub 2019 Feb 6.
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Rehabilitation goals of people with spinal cord injuries can be classified against the International Classification of Functioning, Disability and Health Core Set for spinal cord injuries.脊髓损伤患者的康复目标可依据《国际功能、残疾和健康分类:脊髓损伤核心集》进行分类。
Spinal Cord. 2016 Apr;54(4):324-8. doi: 10.1038/sc.2015.155. Epub 2015 Sep 8.
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The comprehensive ICF core sets for spinal cord injury from the perspective of occupational therapists: a worldwide validation study using the Delphi technique.从作业治疗师的角度来看,脊髓损伤综合国际功能、残疾和健康分类核心组合:使用德尔菲技术的全球验证研究。
Spinal Cord. 2011 May;49(5):600-13. doi: 10.1038/sc.2010.168. Epub 2010 Nov 30.
6
The comprehensive ICF core sets for spinal cord injury from the perspective of physical therapists: a worldwide validation study using the Delphi technique.从物理治疗师的角度来看,脊髓损伤综合国际功能、残疾和健康分类核心组合:使用德尔菲技术的全球验证研究。
Spinal Cord. 2011 Apr;49(4):502-14. doi: 10.1038/sc.2010.155. Epub 2010 Nov 23.
7
ICF Core Sets for individuals with spinal cord injury in the long-term context.长期情境下脊髓损伤患者的国际功能、残疾和健康分类核心组合
Spinal Cord. 2010 Apr;48(4):305-12. doi: 10.1038/sc.2009.183. Epub 2010 Jan 12.
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ICF Core Sets for individuals with spinal cord injury in the early post-acute context.《早期康复阶段脊髓损伤患者的国际功能、残疾和健康分类核心组合》
Spinal Cord. 2010 Apr;48(4):297-304. doi: 10.1038/sc.2009.128. Epub 2009 Sep 29.
9
Benefits and challenges of providing transitional rehabilitation services to people with spinal cord injury from regional, rural and remote locations.为来自地区、农村和偏远地区的脊髓损伤患者提供过渡性康复服务的益处与挑战。
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Disabil Rehabil. 2003 Sep 2;25(17):1008-15. doi: 10.1080/0963828031000122285.