Williams-Reade Jacqueline M, Tapanes Daniel, Distelberg Brian J, Montgomery Susanne
Loma Linda University.
J Marital Fam Ther. 2020 Jan;46(1):135-148. doi: 10.1111/jmft.12377. Epub 2019 Feb 6.
In pediatric chronic illness, little is known about the relational interactions between adolescent patients, parents, and illnesses and how they influence self-management of illness. We conducted interviews with 32 individuals (16 dyads) representing adolescents diagnosed with a chronic illness and their primary parent who had been referred to a psychosocial treatment program for challenges with illness management. Interviews were conducted individually and analyzed dyadically using grounded theory to better understand the relational processes that may be contributing to illness management difficulties. Results include a theory of patient-parent illness responses and how parental illness meanings play a role in adolescent self-management. Results can be used to better understand and treat family relational patterns that may be influencing pediatric illness management challenges.
在儿科慢性病领域，对于青少年患者、父母与疾病之间的关系互动以及这些互动如何影响疾病自我管理的了解甚少。我们对32名个体（16对）进行了访谈，这些个体代表了被诊断患有慢性病的青少年及其主要家长，他们因疾病管理方面的挑战而被转介到一个心理社会治疗项目。访谈是单独进行的，并采用扎根理论进行二元分析，以更好地理解可能导致疾病管理困难的关系过程。研究结果包括一个关于患者-父母疾病反应的理论，以及父母对疾病的认知如何在青少年自我管理中发挥作用。这些结果可用于更好地理解和治疗可能影响儿科疾病管理挑战的家庭关系模式。
