School of Medicine, University of Dundee, MacKenzie Building, Kirsty Semple Way, Dundee, Scotland, DD2 4BF, UK.
Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, Edinburgh, Scotland, UK.
Biomed Eng Online. 2019 Feb 8;18(1):13. doi: 10.1186/s12938-019-0635-4.
My Diabetes My Way (MDMW) is the National Health Service (NHS) Scotland website for people with diabetes and their carers. It consists of an interactive information website and an electronic personal health record (ePHR) available to the 291,981 people with diabetes in Scotland. We aimed to analyse the demographic characteristics of current registrants and system usage and activity during 2016.
We analysed system audit trails to monitor user activity and page accesses on the information website, and logins and activity within the ePHR. The ePHR contains data from SCI-Diabetes, NHS Scotland's flagship diabetes record, sourcing data from primary and secondary care, specialist screening services and laboratory systems. We reviewed patient registration characteristics to collate demographic data for the MWDH cohort, then compared this to aggregate data published in the 2016 Scottish Diabetes Survey. The Scottish Diabetes Survey is an annual population-based report detailing diabetes statistics for the whole diabetes population in NHS Scotland.
The MDMW information website received an average of 101,382 page accesses per month during 2016 (56.9% increase from 2015; n = 64,607). ePHR registrants were more likely to be younger (p < 0.001) and have an ethnicity of "white" (p < 0.001) than the background diabetes population. At the end of 2016, 11,840 people with diabetes had accessed their personal clinical information (58.6% increase since end 2015; n = 7464). During 2016, an average of 1907 people accessed their records each month (48.3% increase from 2015; n = 1286).
My Diabetes My Way is a useful tool aid to diabetes self-management. The service is unique in offering records access to a national population, providing information from all relevant diabetes-related sources, rather than a single silo. MDMW supports the diabetes improvement, self-management, healthcare quality and eHealth strategies of the Scottish Government. The service also has potential to be adapted to work with other clinical systems and conditions.
My Diabetes My Way（MDMW）是英国国民保健制度（NHS）苏格兰网站，面向糖尿病患者及其护理人员。它由一个互动信息网站和一个电子个人健康记录（ePHR）组成，供苏格兰的 291981 名糖尿病患者使用。我们旨在分析 2016 年当前注册用户的人口统计学特征以及系统使用和活动情况。
我们分析了系统审计跟踪，以监测信息网站上的用户活动和页面访问情况，以及 ePHR 中的登录和活动情况。ePHR 包含来自 NHS 苏格兰旗舰糖尿病记录 SCI-Diabetes 的数据，该数据来自初级和二级保健、专科筛查服务和实验室系统。我们审查了患者注册特征，以整理 MWDH 队列的人口统计学数据，然后将其与 2016 年苏格兰糖尿病调查公布的汇总数据进行比较。苏格兰糖尿病调查是一项年度基于人群的报告，详细介绍了 NHS 苏格兰整个糖尿病人群的糖尿病统计数据。
MDMW 信息网站在 2016 年平均每月收到 101382 次页面访问（比 2015 年增加了 56.9%；n=64607）。ePHR 注册用户比背景糖尿病人群更年轻（p<0.001），且更有可能为“白人”种族（p<0.001）。截至 2016 年底，已有 11840 名糖尿病患者访问了他们的个人临床信息（自 2015 年底以来增加了 58.6%；n=7464）。在 2016 年，平均每月有 1907 人访问他们的记录（比 2015 年增加了 48.3%；n=1286）。
My Diabetes My Way 是一种有用的糖尿病自我管理辅助工具。该服务的独特之处在于为全国人口提供记录访问权限，提供来自所有相关糖尿病来源的信息，而不是单一的信息孤岛。MDMW 支持苏格兰政府的糖尿病改善、自我管理、医疗质量和电子健康战略。该服务还有可能适应与其他临床系统和条件的合作。
