Wake Deborah J, He Jinzhang, Czesak Anna Maria, Mughal Fezan, Cunningham Scott G
School of Medicine, University of Dundee, Ninewells Hospital, Dundee, UK
School of Medicine, University of Dundee, Ninewells Hospital, Dundee, UK.
J Diabetes Sci Technol. 2016 Aug 22;10(5):1050-8. doi: 10.1177/1932296816648168. Print 2016 Sep.
MyDiabetesMyWay (MDMW) is an award-wining national electronic personal health record and self-management platform for diabetes patients in Scotland. This platform links multiple national institutional and patient-recorded data sources to provide a unique resource for patient care and self-management. This review considers the current evidence for online interventions in diabetes and discusses these in the context of current and ongoing developments for MDMW. Evaluation of MDMW through patient reported outcomes demonstrates a positive impact on self-management. User feedback has highlighted barriers to uptake and has guided platform evolution from an education resource website to an electronic personal health record now encompassing remote monitoring, communication tools and personalized education links. Challenges in delivering digital interventions for long-term conditions include integration of data between institutional and personal recorded sources to perform big data analytics and facilitating technology use in those with disabilities, low digital literacy, low socioeconomic status and in minority groups. The potential for technology supported health improvement is great, but awareness and adoption by health workers and patients remains a significant barrier.
“我的糖尿病自我管理之路”(MDMW)是一个屡获殊荣的全国性电子个人健康记录和自我管理平台,面向苏格兰的糖尿病患者。该平台连接了多个国家机构和患者记录的数据源,为患者护理和自我管理提供了独特的资源。本综述考虑了当前关于糖尿病在线干预的证据,并在MDMW当前及正在进行的发展背景下进行了讨论。通过患者报告的结果对MDMW进行评估,结果显示其对自我管理有积极影响。用户反馈突出了采用过程中的障碍,并指导了平台从教育资源网站向电子个人健康记录的演变,如今该记录涵盖远程监测、通信工具和个性化教育链接。为长期疾病提供数字干预面临的挑战包括整合机构记录和个人记录数据源之间的数据以进行大数据分析,以及促进残疾人士、数字素养低、社会经济地位低的人群和少数群体使用技术。技术支持健康改善的潜力巨大,但卫生工作者和患者的认知度及采用率仍然是一个重大障碍。