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偏头痛:社会污名。

Migraine: Stigma in Society.

机构信息

Department of Neurology, Thomas Jefferson University, Philadelphia, PA, USA.

Jefferson Hospital for Neuroscience, Nine Hundred Walnut Street, Second Floor, Suite #200, Philadelphia, PA, 19107, USA.

出版信息

Curr Pain Headache Rep. 2019 Feb 9;23(1):8. doi: 10.1007/s11916-019-0743-7.

Abstract

Migraine is a prevalent disease with a substantial socioeconomic impact. However, stigma affects social attitude toward migraine, accruing additional burden on individuals with migraine and isolating them from a society that should be supporting them. PURPOSE OF THIS REVIEW: This review will discuss the following concepts: (1) the emergence of stigma toward migraine and its impact on medical care; (2) internalized stigma among those with migraine and its detrimental effect on quality of life and patient-physician relationships; (3) the structural impact of stigma on research funding, workplace support, and specialized care; and (4) strategies for "rebranding" the disease and alleviating stigma toward migraine. RECENT FINDINGS: Recent literature on condition rebranding offers strategies on how to define and communicate migraine to the public. Rebranding of migraine to alleviate societal stigma is paramount. This involves use of unified language, education, and advocacy.

摘要

偏头痛是一种常见疾病,具有重大的社会经济影响。然而,偏头痛患者所面临的耻辱感问题影响了社会对偏头痛的态度,给偏头痛患者带来了额外的负担,使他们与本应支持他们的社会隔绝。本综述的目的在于:讨论以下几个概念:(1)偏头痛患者面临的耻辱感的出现及其对医疗的影响;(2)偏头痛患者内心的耻辱感及其对生活质量和医患关系的不利影响;(3)耻辱感对研究资金、工作场所支持和专门护理的结构性影响;以及(4)“重塑品牌”和减轻偏头痛耻辱感的策略。最近的文献就疾病的重塑品牌提供了一些策略,说明了如何向公众定义和传达偏头痛。重塑偏头痛形象以减轻社会耻辱感至关重要。这涉及使用统一的语言、教育和宣传。

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