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揭开偏头痛的污名:对其影响及变革策略的全面综述

Unravelling Migraine Stigma: A Comprehensive Review of Its Impact and Strategies for Change.

作者信息

Casas-Limón Javier, Quintas Sonia, López-Bravo Alba, Alpuente Alicia, Andrés-López Alberto, Castro-Sánchez María Victoria, Membrilla Javier Amós, Morales-Hernández Cristian, González-García Nuria, Irimia Pablo

机构信息

Headache Unit, Hospital Universitario Fundación Alcorcón, 28922 Alcorcón, Spain.

Headache Unit, Hospital Universitario de la Princesa, Instituto de Investigación Sanitaria Princesa (IIS-Princesa), 28006 Madrid, Spain.

出版信息

J Clin Med. 2024 Sep 3;13(17):5222. doi: 10.3390/jcm13175222.

Abstract

Migraine-related stigma is a pervasive issue impacting nearly half of chronic migraine patients, with significant consequences for their quality of life, disability and mental health. Despite its profound effects, migraine stigma remains under-recognised in both clinical practice and research. This narrative review explores the three primary types of stigmas affecting migraine patients: public, structural and internalised. Public stigma involves negative societal attitudes and stereotypes that trivialise the condition. Structural stigma is reflected in policies that restrict access to necessary care and resources. Internalised stigma occurs when patients absorb these negative views, leading to self-blame and diminished self-worth. Addressing these different types of stigmas is crucial for improving the understanding, diagnosis and treatment of migraine. Educational efforts, advocacy and policy reform are essential strategies in this context. A deep understanding of stigma is vital for developing effective interventions that enhance clinical management and patient quality of life. Ultimately, reducing stigma can lead to better health outcomes and a more comprehensive approach to migraine care.

摘要

偏头痛相关的污名化是一个普遍存在的问题,影响着近一半的慢性偏头痛患者,对他们的生活质量、残疾状况和心理健康产生重大影响。尽管其影响深远,但偏头痛污名化在临床实践和研究中仍未得到充分认识。这篇叙述性综述探讨了影响偏头痛患者的三种主要污名类型:公众污名、结构性污名和内化污名。公众污名涉及负面的社会态度和刻板印象,这些态度和刻板印象将病情视为微不足道。结构性污名体现在限制获得必要护理和资源的政策中。当患者接受这些负面观点时,就会产生内化污名,导致自我责备和自我价值感降低。解决这些不同类型的污名对于提高对偏头痛的理解、诊断和治疗至关重要。在这种情况下,教育努力、宣传和政策改革是必不可少的策略。深入理解污名对于制定有效的干预措施至关重要,这些措施可以加强临床管理并提高患者的生活质量。最终,减少污名可以带来更好的健康结果,并形成更全面的偏头痛护理方法。

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本文引用的文献

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Editorial: Cultural considerations in relation to mental health stigma.社论:与心理健康污名化相关的文化考量
Front Psychiatry. 2024 May 29;15:1434319. doi: 10.3389/fpsyt.2024.1434319. eCollection 2024.
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Hemiplegic migraine.偏瘫性偏头痛。
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