Division of Gastroenterology and Hepatology, Northwestern University Feinberg School of Medicine, 676 N. Saint Clair Street Suite 1400, Chicago, IL, 60611, USA.
J Clin Psychol Med Settings. 2020 Mar;27(1):1-10. doi: 10.1007/s10880-019-09605-7.
The aim of the current study is to evaluate internalized stigma in individuals diagnosed with an eosinophilic gastrointestinal disorder (EGID) and its impact on psychosocial and health-related outcomes. The final study sample consisted of 149 patients with a self-reported EGID diagnosis for at least 6 months. Participants completed measures evaluating internalized stigma, disease-specific quality of life, emotional distress (anxiety, depression) and answered questions regarding healthcare utilization. Overall, increased internalized stigma was associated with decreased disease-specific quality of life, and increased anxiety and depression. In addition, participants with greater overall internalized stigma felt that treatments were less effective, and the internalized stigma subscales of alienation and discrimination were associated with increased outpatient visits and endoscopies, respectively. Providers working with EGID patients should assess for signs of internalized stigma, such as social withdrawal and alienation. Psychogastroenterology services that deliver evidence-based psychological interventions may reduce some of the negative impacts of internalized stigma.
本研究旨在评估嗜酸细胞性胃肠病（EGID）患者的内化污名及其对心理社会和健康相关结果的影响。最终的研究样本包括 149 名自我报告 EGID 诊断至少 6 个月的患者。参与者完成了评估内化污名、疾病特异性生活质量、情绪困扰（焦虑、抑郁）的量表，并回答了有关医疗保健利用的问题。总的来说，内化污名程度的增加与疾病特异性生活质量的降低以及焦虑和抑郁程度的增加有关。此外，总体内化污名程度较高的参与者认为治疗效果较差，而异化和歧视的内化污名子量表分别与增加的门诊就诊次数和内窥镜检查次数相关。与 EGID 患者合作的提供者应评估内化污名的迹象，如社交退缩和异化。提供基于证据的心理干预措施的心理胃肠病服务可能会减轻内化污名的一些负面影响。
