Division of Gastroenterology, Northwestern University Feinberg School of Medicine.
J Pediatr Psychol. 2012 Jun;37(5):523-32. doi: 10.1093/jpepsy/jsr118. Epub 2012 Jan 23.
To characterize caregiver stress (CS) in parents of children with Eosinophilic Gastrointestinal Disorders (EGIDs) and understand relationships with psychological functioning and child behavior.
Caregivers with a child (0-17 years) with EGID completed questionnaires for demographics, EGID severity, treatments, CS, psychological distress, self-efficacy, and child behaviors.
A total of 163 caregivers (98% mother, 94% Caucasian) participated. CS correlated with psychological distress, income, child behavioral problems, treatments, and disease severity. Children were rated higher than age-specific norms for emotional difficulties. Behavioral difficulties associated with gender, age, EGID severity, and duration. Parent psychological distress was most strongly associated with CS. Parental self-efficacy, dietary treatments, and child emotional difficulties were also related to stress.
Mothers reported stress and psychological distress from caring for a child with EGID. The relationship between these variables suggests these parents may benefit from supportive psychotherapy interventions. Evaluation of parental self-efficacy and child behavior is also warranted.
描述儿童嗜酸性胃肠道疾病（EGID）患儿父母的照顾者压力（CS），并了解其与心理功能和儿童行为的关系。
有 0-17 岁 EGID 患儿的照顾者完成了人口统计学、EGID 严重程度、治疗、CS、心理困扰、自我效能和儿童行为的问卷。
共有 163 名照顾者（98%为母亲，94%为白种人）参与。CS 与心理困扰、收入、儿童行为问题、治疗和疾病严重程度相关。儿童的情绪困难评分高于年龄特定的正常水平。行为困难与性别、年龄、EGID 严重程度和持续时间有关。父母的心理困扰与 CS 关系最密切。父母的自我效能、饮食治疗和儿童的情绪困难也与压力有关。
母亲报告说，照顾患有 EGID 的孩子会感到压力和心理困扰。这些变量之间的关系表明，这些父母可能受益于支持性心理治疗干预。评估父母的自我效能和儿童行为也是必要的。
